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Subject: August 3 2010 Reach Parent Network Weekly Newsletter
: 2010-08-03 14:35:28
: 30
Content:
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3 August 10 REACH Parent Network Weekly Newsletter.

 

To submit for our newsletter please contact Pam Collins at parentnetwork@reachdevelopment.org or 604-946-6622 ext 359

You can sign up at the  Reach Child and Youth Development Society website to receive this newsletter directly.

 

1. Help a parent! Need to know something? Want to contact other parents? This is YOUR space...

 

·      MOMS is looking for stories!  Are you having difficulty obtaining services or any issues with the following:

Special education: trouble accessing public education with required supports, inclusive placement, appropriately-trained staff, IEPs, consistency in programming, etc
Supported Child Care: trouble accessing supports among younger children as well as teens
Group homes/residential: individuals threatened with forced relocation from a group home to a less costly alternative; eligible individuals denied/waitlisted for a group home placement; individuals placed inappropriately in home share arrangements (note: we're not suggesting that there is anything intrinsically wrong with home share - it works very well for some but it's not the right choice for everyone and the concern is about CLBC forcing individuals into home share arrangements that are unsafe/inappropriate just to save a dollar).
Other issues? Family support, respite, access to early intervention/ therapy (autism or other special needs), adult transition, waitlists, adults with IQ>70, etc We need as much community feedback as possible re what's working or not working to shape our fall advocacy campaigns, and we will also need individuals willing to share their personal stories with media & govt to illustrate the issues at a human level.reply to us at: momsonthemove@telus.net(If you share information, please specify privacy requirements: Are you willing to talk to media, govt or opposition reps? Can we just share your story anonymously or your contact info as well?)

·      Hi, I'm looking for stories from parents who are have had challenges obtaining Supported Child Development funding for their children when they turn 13; parents who may have to quit their job in order to look after their child or who can't look for work because they can't get SCD.  I need to know what region of the province you live in.  All personal information will be kept strictly confidential.  SCD's primary mandate is 0 -6; then if there if there is funding 7 - 12; however, very few regions actually can or will provide support for 13 - 18.  I have heard of parents having to quit their jobs, or or can't look for work because of they can't get support for their child.  I'm also starting to hear of children being asked to leave day cares because there isn't enough support for the child and there is a waitlist for support.  Please contact Cyndi at momsonthemove@telus.net

·      Our 9 year old son has just been diagnosed with type 1 diabetes.  He also has autism. I'm hoping to find other parents out there who can advise about the best way to advocate for support for him at school and who might know what kind of additional funding, if any, the school will receive as a result of him having this second diagnosis.  The plan for the coming school year was for him to have a 30% EA -- my fear is that this is not enough time to help with monitoring the diabetes and supporting his ASD.  We are in Richmond, where like everywhere else, support levels for the coming year have been cut thin. Thanks in advance to anyone who might be able to offer any advice! Please respond to momsonthemove@telus.net

2.  NEWS

·      Correcting errors by Mary Ellen Turpel-Lafond, Courier-Islander

Published: Wednesday, July 21, 2010 Re: "Without cause, how can the ministry do checks?", July 16 Letter to Editor, by Mary Polak.

As B.C.'s Representative for Children and Youth, I'm writing to correct erroneous information in a recent letter to the editor from the Children and Family Development minister, regarding my audit of government's Child in the Home of a Relative (CIHR) program. The audit was an in-depth examination of this financial assistance program, which helps relatives care for children who can't be cared for by their parents.

·      Families fear worst as groups homes cut I met with three families recently who are frightened by rumours they're hearing about the group homes where some of their family members live. They're not alone.

·      Potential home closure raise ire Families of four residents with disabilities living in a group home in Powell River are upset with what they feel to be pressure from Community Living BC (CLBC) to move their loved ones into a different, and they believe unacceptable, housing situation.

·      MOMS Group Home Cuts Web page offers a forum to collect and share information on this topic

 Online Petition urging government to halt and review the current program to ensure that the best interests of adults with developmental disabilities are served:Please sign and widely circulate the  petition link: http://www.petitiononline.com/home2010/

  • Link to the Representation Agreement Website

A representation agreement offers a quick, easy and affordable mechanism to ensure that family members are  included in decisions affecting the wellbeing and safety of an adult with  developmental disabilities : http://www.rarc.ca/ 

  • Letter from MLA Nicholas Simons to the Minister expressing concern about group home cuts:

MLA letter from Simons to Coleman

  • PRESS RELEASE - For Immediate Release
    MOMS call on Minister to halt group home cuts, forced eviction of disabled adults August 2, 2010: Moms on the Move (MOMS), BC's largest network of families of people with developmental disabilities, has called on Minister Rich Coleman to halt a cost-cutting initiative by Community Living BC, after media reports that it is forcibly relocating adults with developmental disabilities from their group homes to potentially unsafe or unsuitable residential alternatives.
  • In a letter to the Minister, MOMS expressed concern over reports that group home residents were being forced to leave their homes against their wishes, and that their relatives are being excluded from decision-making or their concerns ignored. MOMS also warned that these cost-cutting measures threaten safety and could potentially expose highly-vulnerable adults to abuse or neglect.
    MOMS called for an independent review of the changes that have been ordered by Community Living BC, which has been forced to find savings after a $20 million provincial budget cut this year. The parent network also called for more transparency, full involvement of families and advocates in all placement decisions, meaningful choices, and a stronger and more transparent oversight framework to reassure the public that residents are being supported appropriately and protected from neglect and/or abuse in all residential care settings.
    MOMS also launched an online petition and created a special Group Home information Web page to support families from around the province who have been frustrated by the failure of the Provincial government and/or CLBC to respond to their concerns about the changes underway. The Web page includes background information, reports and links showing that budget pressures since 2001 have repeatedly threatened group homes, which have been a vital component of the community-based residential care options that were established in BC in the wake of de-institutionalization in the 1990s.  

Research Project on Home-Sharing Looking for Participants A group of researchers with the University of British Columbia (UBC) and the Canadian Association for Community Living wants to hear about your experiences with home-sharing. The study is titled "Road to Inclusion or Increased Risk? Home-sharing and people with intellectual disabilities."Home-sharing is a living arrangement that connects an adult with a developmental disability with a non-disabled housemate who provides support and who share a home together.

The researchers would like to talk to people who are at least 19 years old and who currently live together in home-sharing living arrangements.

There will be separate two-hour interviews with adults with developmental disabilities living in a home-sharing residence and interviews with home-sharing caregivers.Interviews will take place in a private comfortable place. A small gift ($15) will be given to those who participate.If you would like more information or wish to participate, please contact Rachelle Hole, lead researcher, at 250-807-8741 or rachelle.hole@ubc.ca.

 3.  Reach Child and Youth Development Society

Reach News

Reach on Facebook

Reach on Twitter

 

4.  Autism

·      NEW!!  Free, Downloadable SketchUp Projects for the Autism Community

·      WORKING TO PREVENT WANDERING INCIDENTS AND DEATHS WITHIN THE AUTISM COMMUNITY

·      Ready - Set - Potty - A new resource for potty training for children with Autism

·      Autistic Girl Expresses Profound Intelligence  - Check out Carly!

·      Study uses Alzheimers Drug to treat autism

·      Cardiff study aims to uncover source of sensory problems in autism  The way the brain reacts differently to the sense of touch in people with Autism will be examined as part of an innovative Cardiff University study designed to create better understanding of the condition.

·      Parents Of Grown Offspring With Autism More Likely To Split Up

 

 

5. ADHD

·      Widely Used Chemicals Linked To ADHD In Children

·      Getting Your ADD/ADHD Child to Behave

·      ADHD Teens more likely to drop-out of school

·      UNH professor to study impacts of ADHD treatment  For most teenagers, it's easy to focus on activities they like - video games, sports or watching television. But why do they lose that focus for more important things, like homework?

 

6. Downs Syndrome

·       Casper Lja Continues to inspire and educate people on his Journey across Canada - finishing in BC summer 2010

·       Down Syndrome Buddy Walk  Saturday, September 25th. Enjoy local entertainment and a delicious lunch.  For more details and to pre-register contact:  or www.fvdss.org Early Bird cut-off deadline is September 18th.

7.  FASD

·      Prenatal Alcohol Exposure: Children Of Older Women Appear More Vulnerable The presence and severity of Fetal Alcohol Spectrum Disorders (FASD) are influenced by factors beyond alcohol consumption. A new study of one of those factors that may increase the risk of FASD - maternal age - has found that the impact of maternal binge drinking during pregnancy on attention was greater among children born to older drinking mothers.

·      3rd Annual FASD "Creating Change" Fall Conference: FASD Collaboration Roundtables Oct 22nd and 23rd, 2010 at Douglas College New Westminster Campus. For more information and registration, click here.

 

8.  Ministry Information

 

NEW BC Disability Benefits Help Sheets These were updated recently, and they include information about:
- Income Assistance for Persons with Disabilities
- Persons with Disability (PWD) funding
-Disability Tax Benefit
-Registered Disability Savings Plans and more...

 

Excellent resource on Registered Disability Savings Plan (RDSP)

 

Ministry of Children and Family Development: Responsible for providing a range of services and supports for children and youth with special needs and their families

Community Living British Columbia: Responsible for delivering services and supports for adults with developmental disabilities

 

·      Personalized Supports Initiative (PSI) Facts about Assessment

·       Assessor Report Forms

·      NEW Eligibility Policy effective JULY 1, 2010

Ministry of Housing & Social Development: Responsible for education and support payments, work programs, bus passes and health and dental benefits for persons with disabilities.

 

9. Education

 

10. Medical

·      Complex child magazine Click here for the August Edition

 

  11. Policy

 

12. Workshops & Training

·      DAVID PITONYAK in Vancouver September 30,2010

Beyond "Behaviours" - Supporting Competence, Confidence and Well-being Spectrum's 101 Friends Personal Support Networks project is excited to once again host David Pitonyak in Vancouver. Difficult behaviours result from unmet needs.  This workshop examines seven quality of life indicators that are often missing in the life of a person who experiences our services.  Based on the idea from Jean Clarke that a person's needs are best met by people whose needs are met, this day-long workshop examines strategies for supporting not only an individual who experiences disabilities but also the needs of his or her caregivers.9 - 4:30, Sept 30th, 2010 Vancouver Unitarian Church at 949 West 49th Avenue$100.00 including lunch.  To register, judy@spectrumsociety.org or 604-323-1433 or online at http://www.spectrumsociety.org/psn/pages/kendrickjune2010.aspx

·      Transforming Parent-Child Interaction with Positive Behaviour Support Presented by: Joseph Lucyshyn, Ph.D Friday & Saturday, December 3 & 4, 2010 - Vancouver

·      Oct 2nd, Vancouver: a co-hosted even by Vela, 101 Friends and Spectrum. Celebrating Stories of Community Living - 4 events in one! Crafting, Sharing and Learning!  "I hope, wherever you come from, there is someone who holds your story.  Someone who remembers you when you were knee-high to a grasshopper. Being known is critical to our well-being. Having our stories held and told by others gives us a sense of place in the world, a sense of belonging, what Pema Chodron has called, ‘the good ground.'"  from "Who Holds Your Story" by David Pitonyak. We're thinking we don't get together enough to just talk and share!   Please join us for a day co-hosted by the Vela Microboard Assocation, the 101 Friends Personal Support Networks project and Spectrum

·      THE RIPPLE EFFECT October 21, 2010 Come to beautiful Whistler for this exciting and informative retreat sponsored by BCACL especially designed for family members supporting a child with special needs or adult with a developmental disability. If you are committed to making communities more inclusive and welcoming and want to learn more about the community living movement, download the flyer for more information.

·      Fulfilling YOUR Dreams: A Self Advocate One Day Conference

Date:      August 12, 2010

Time:    9:00 am to 4:00 pm

Where:   Holiday Inn Express, Richmond

10688 No. 6 Road., Richmond

Cost:     Early Bird - $30

Standard - $35

Presented by: Richmond Society Self Advocates For more information call:

Nancy Long 604-279-8743 or Shannon Crofton 604-279-8267

·      Best Practices: High School Transitions and Inclusive Work for Students with Disabilities.  September 20 and 21, 2010 Dr. Paul Wehman of Virginia Commonwealth University will be presenting the most current research and practice on inclusive real work for real pay for students with disabilities during the high school years. Dr. Wehman is a pioneer of inclusive employment practices for students with disabilities and was voted one of the top 10 special educators of the millennium.  Read the brochure here.

·      3rd Annual FASD "Creating Change" Fall Conference: FASD Collaboration Roundtables Oct 22nd and 23rd, 2010 at Douglas College New Westminster Campus. For more information and registration, click here.

·      Mental Illnesses and Developmental Disabilities."  hosted by "Developmental Disabilities Mental Health Services," part of the Fraser Health and Vancouver Coastal Health. This course is suitable for families, teachers, social workers, nurses, group home staff, counselors, and other professionals working with those with developmental disabilities, mental health issues and/or behavioural issues.  The course meets weekly on Fridays starting in early September, going through until mid-December.  It does have a considerable amount of take home homework.  At the end of the program participants will have been introduced to all of the major mental illnesses, will have completed a behavioural assessment and intervention package as their homework, and will have heard about many other related topics such as counseling, sexual health, family systems, etc.  Our instructors include several behaviour therapists, many nurses, a psychologist, an art therapist, a music therapist, a sexual health therapist and more. If interested contact anne.halas@fraserhealth.ca.

·      School District 70 (Alberni) Student Support Services is proud to present...
Dr. Gordon Neufeld, Level 2 Intensive Challenging Childhood Problems
August 23 to 27, 2009

Time: Monday to Friday 8:30 am 1:30 pm
Location:
Parksville Conference Centre 132 E. Jensen Avenue, Parksville, B.C. Registration Fee: $450.00 (morning refreshments provided)
Due to increasing demand for more intensive training, Dr. Neufeld has added a second level of training that builds on the conceptual foundations provided in the first week intensive.  The focus of this intensive is the challenging problems of childhood and youth: aggression, resistance, oppositionality, anxiety, dominance problems, bullying, compulsiveness, attachment problems, separation problems and much more.  The objective is to make sense of these problems and from this foundation of insight, to outline strategies for treatment and intervention. The basic prerequisite for this intensive is the Level One Week Intensive or its equivalent (i.e., five or six day courses) in the conceptual foundations of Dr. Neufeld's attachment-based developmental paradigm. For more information contact: Tamara Strijack tamarastrijack@gordonneufeld.com Lis Kroeker lkroeker@shaw.ca
Barb Witte at 250 720-2770 or email at bwitte@sd70.bc.ca

·       Speaking of Kids Conference - October 22, 2010 - HENRY WINKLER back by popular Demand!  Learning Disabilities Association of Vancouver

·      2010 Naturally Autistic ANCA Presentation October 30, 2010 UBC Square Theatre - Calling for Award Nominations and Art Submissions

·       FAMILY FOCUS CONFERENCE  "Families, a Journey of Generations Moving Mountains" October 22-24. This will be a great conference for families. Advance Program available here If you are thinking of going it is advisable to book accommodation early, as the Chateau Whistler will be a draw. Register Here

·      See All ACT Upcoming Events

·       POPARD's Introduction to Autism Spectrum Disorders: A Course for Education Professionals, Paraprofessionals & Parents. Session 1: July 26 - 30, 2010; Session 2:  August 23 - 27, 2010. Monday to Friday 9:00 am - 3:30 pm SFU Harbour Centre Campus515 West Hastings Street, Vancouver Registration is limited to 30 - Register early to avoid disappointment!

 

13. Seasonal

 

·      Family Travel with Exceptional Children Summer travel with a special needs child can definitely add adventure to your plans. Still, take time for careful planning and discuss things with the whole family first, so that an adventure doesn't translate into a nightmare. We all dream of relaxing on warm sandy beaches, curling up fireside in the mountains, or touring beautiful, historic locales. Just getting to those destinations in one piece can be draining without a careful plan. Here's how to avoid tiring trips, activities, and wearing out loved ones and caregivers.

 

·      CANUCKS AUTISM NETWORK SOUP FROM THE SOUL week long culinary camp for youth aged 15-20, with ASD.  This is a unique summer experience for teens aged 15 - 20 with ASD.  It is a pre-vocational day camp designed to equip students with basic culinary skills and the ability to carry out tasks in an industrial kitchen environment with confidence. Monday August 9 - Friday August 13th from 10am to 4pm (plus a mandatory introduction session August 5 from 6 - 7 pm.  It is held at the Tenth Alliance Church, 11 West 10th Avenue, Vancouver.  The deadline to register is July 30th!  Contact Robyn Pinese at robyn@canucksautism.ca or call at 604-685-4049

 

13. Other

·      Mandatory Warnings Placed On Food And Drink Colorings Linked To Childhood Hyperactivity, Europe

·      Tips for Job Seekers with Disabilities

·      Welcome to the 101 Friends Personal Support Networks e-newsletter!  August Edition

·     
I am looking for participants to join one of two new programs.
The first program is RU (Recreation Unlimited). RU is a unique inclusive program which offers young adults with developmental and or physical disabilities (19-25 years old) the opportunity to participate in an integrated, yet supported, social/recreational environment. As well as providing a 3:1 staff ratio, RU provides 1:1 peer volunteers. Recreation Unlimited will run for two weeks at the end of August. August 23rd-Sept 3rd, Mon-Friday. The cost is $100/participant/week. RU will run out of Britannia Community Center. The second program is SEE YA (Special Events and Extras for Young Adults). SEE YA is a social/recreational program designed for high functioning young adults (19-25years old) on the spectrum. SEE YA will run every Saturday afternoon (1:30-4:30pm) at Riley Park Community Center from Sept 25th - Dec 4th. The cost for SEE YA is $154/10 sessions.
Please forward this information to the young adults in your life whom you feel may be a fit for either one of these programs
Melanie Josephs Recreation Programmer - Access Services Queen Elizabeth District Vancouver Park Board 604-257-8500

melanie.josephs@vancouver.ca

·      Karen Kester, MA BCBA Behavioural Consultant, Linking Autism and Families has added a new service .   I am offering a social skills program for children aged 3-5.  The program is geared for children who have some language, emerging play skills and are able to independently follow simple directions.  The program is 8 weeks in total: It involves seeing each client 2x/week (once one-to-one and once in a group format).   I currently have a group of 3 children that have expressed great enjoyment.  Some of these children will return for the next session, which begins on August 25th.  I would also like to add a second group to help accommodate conflicting schedules, so all the children can return.  If you have any questions, please feel free to email karen@laaf.ca or call (604-862-5949).

 

 

Reach posts a variety of material in this newsletter for the information of our readers only. Reach neither endorses nor condemns this material. We urge readers to consider this information with a critical eye and to form their own opinions about its validity or applicability to their situation.

 

Pam Collins for Reach Child and Youth Development Society, Formerly known as the Delta Association for Child Development

 

Tel: 604-946-6622, ext 359,

 

If you have received this communication in error, please contact Reach by phone at 604-946-6622, and press 0.

 

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