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Subject: August 31 2010 Reach Parent Network Weekly Newsletter
: 2010-08-31 13:02:11
: 34
Content:
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31 August 10 REACH Parent Network Weekly Newsletter.

 

To submit for our newsletter please contact Pam Collins at parentnetwork@reachdevelopment.org or 604-946-6622 ext 359

You can sign up at the  Reach Child and Youth Development Society website to receive this newsletter directly.

 

1. Help a parent! Need to know something? Want to contact other parents? This is YOUR space...

·      HFrom a parent:
I have confirmed with the Autism Funding Unit that service providers and/or parents can email invoices to them directly at
MCF.AutismFundingUnit@gov.bc.ca They print out the invoices and time stamp them 2-3 times a day. It is a secured email box. Only a handful of people have access to that email box. They actually prefer a clear scanned image rather than a blurry fax. Also, individual BIs and therapists can email invoices bi-weekly to the ministry and are encouraged to fill out the form FIN312 to set up a direct deposit with the Ministry. They must call 1 877 777-3530 to request the FIN312 and mail back the original. However, big firms and therapists under a company, ie, ABA centre, Monarch House, ABLE, Loyst etc, can only invoice the Ministry once a month. Please pass on this information. Thanks

·      HHello - I have a parent looking for a Medical Doctor who is familiar with and in favor of the DAN protocol - please respond to parentnetwork@reachdevelopment.org.

·      <Volunteers Needed for Blazin' Soccer Dogs >  2010 season!  Please see the link for more information.

2.  NEWS

·      "Temple Grandin" movie wins 7 Emmy Awards!  See Temple on stage!

·      Group thinking  Special approval is now required for developmental disabled individuals to receive government-funding to live in a group home, Public Eye has learned. The directive is included in an internal draft policy Community Living British Columbia is using when determining new living arrangements for those individuals, as well as when existing arrangements come up for review.

·      Moms on the Move is collecting stories from families concerned with these closures and has created a "Speaking Up: Group Homes" webpage

They also have a petition protesting group home closures for adults addressed to Rich Coleman, Minister responsible for Community Living BC.

 

 3.  Reach Child and Youth Development Society

·      Kids Friendship Club is a group where children & youth with autism can socialize, share feelings and experiences, and learn more about social skills together while having fun! It is staffed with a behavioural consultant and a behavioural interventionist in a child/staff ratio of 4:1. Our goal is to help strengthen your child's social skills through gentle guiding, coaching, and supporting their social interaction within the group and during community outings.

Fall 2010- Kids Friendship Club is for:
Who:                grade 5 to 7 boys and girls
When:               
Wednesdays    6:00-7:30 PM
                     September 22nd - November 24, 2010
Where:             Reach Child and Youth Development Society
                        10921 82 Avenue , North Delta B.C. V4C 2B2

Cost:                 $650 per child; 10 weeks 
Fall 2010- Friendship Club is for:

Who:                grade 8-12 boys and girls
When:               
Tuesdays, 6:30- pm - 8:30 pm
                      Sept. 21st - Dec. 7th 2010
Where:             Reach Child & Youth Development Society
                        10921 82 Avenue, North Delta V4C 2B2
Cost:                 $780 per child ; 12 weeks

Call Elysa Philip at 604-946-6622 ext 312 or email elysap@reachdevelopment.org to determine eligibility

·      Positive Parenting; The Basics and Beyond! A two-evening interactive workshop on creating a positive, supportive atmosphere for your family interactions. You will learn positive strategies for dealing with difficult behaviour, how to diffuse power struggles, offer appropriate choices, be consistent, provide consequences, model appropriate behaviour and much ...more. Presented by Reach Child and Youth Development Society and facilitated by Camille Netherton and Pam Collins. At the Surrey Conference Centre 400 - 9260 140th Street Surrey Room #3 From 6:00pm - 9:00pm on September 29th and October 6th 2010 . Cost : $20.00 per person Coffee, Tea, water and snacks will be provided. To register call 604-946-6622 ext 343 , fax 946-6223 or email caroly@reachdevelopment.org

Reach News

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4.  Autism

·      Autism and ABA in the UK: A controlled trial   Patricia Howlin: Our data support the growing consensus that no one intervention for children with ASD is universally superior to all others (NIASA, 2003).

·        Communication and Emotional Expression   Is there a "right" way to communicate emotion? For many people who have non-traditional methods of communication, it certainly seems that the world thinks so.

·      Five Benefits of growing up with an Autistic Sibling!  Every sibling relationship is unique, but having an autistic child in a family can impact the entire family dynamic. While much attention is paid to the challenges and difficulties faced by parents and siblings of autistic children, growing up with an autistic sibling also offers many advantages and hidden treasures that can help shape an individual's life and character. Here are five benefits of growing up with an autistic sibling:

·      SCIENTIFIC AMERICAN Autism Might Slow Brain's Ability to Integrate Input from Multiple Senses  A new study found that kids with autism were slower to integrate stimuli from different senses, providing possible explanations for behavioral differences

·      Walk Now for Autism Speaks This is a family-friendly FUNdraising event so bring the whole family along. There are activities for children of all ages, resources for families, light refreshments and entertainment.
WHEN: Sunday, September 26, 2010, Registration starts 8:30 AM, Walk 10:00 AM
WHERE: Nat Bailey Stadium, Vancouver
COST:  There is no registration fee but participants should bring donations, see the link for more information about fundraising and team-building.

·      Brightness in Otherwise Dark Autism Media Coverage  Mainstream press coverage of autism has been so overwhelmingly bad for so long that I have no expectations when I scan the news.  Newspapers and TV stations will casually announce that one percent of children have autism.  The public is left to deal with the frightening admission that no one knows what causes autism so there's no way to prevent it.  And there's no cure for autism.

·      Behind the Paw: Living with Autism  Hi, My name is Lucas and I am nearing my 18th birthday. I have been diagnosed with Autism before my first year of school. I am going to college in the new school year so I'll tell my story of Autism.

·       Seven easy ways to help a family diagnosed with autism  We've all heard the news: one in 91 children are now being diagnosed with autism in the United States alone. This is staggering. Today, almost everyone knows someone with autism. And yet, with all the talk about cures, causes and concerns, there is rarely any information on how we can support a family with this diagnosis. All too often, because folks don't know what to do, they do nothing! Even to the extent of avoiding the family out of fear, or just out of not knowing what to do or say. In this post, I hope to show how simple acts of kindness can make a world of difference for families who have children with autism.

 

5. ADHD

·      Cognitive Behavioral Therapy Plus Medication Better Than Medication Alone For ADHD Adult Patients  An adult with attention-deficit/hyperactivity disorder (ADHD) who takes targeted medication combined with 1-on-1 sessions of CBT (cognitive behavioral therapy) is likely to experience significantly greater improvement of symptoms compared to an ADHD adult patient who only has the medication, according to research published in JAMA (Journal of the American Medical Association), August 25th issue.

·      Pesticides May Be Contributing To ADHD And Adversely Affecting Brain Development  A baby is more likely to suffer from ADHD (attention deficit/hyperactivity disorder) while it is still in the womb if the mother is exposed to organophosphate (OP) pesticides, according to a new study published in Environmental Health Perspectives. Over the last few years there has been increasing interest in determining whether OP pesticides might undermine brain development.

·      Focus the Attention of Distracted ADHD Children  Creative ways to keep distracted children with ADHD and learning disabilities focused and engaged in the classroom and at home.

·      Helping ADHD Students Get Organized for School  For ADHD children, the ability to organize, prioritize, and manage time is impaired by neurological deficiencies that make it hard for them to stay on top of school assignments. Find out how to help ADHD students master organization at home and at school.  Read more at link above.

·      ADD/ADHD On-Line Expo Sept 12 - 18 Join us this September 12th - 18th for a series of presentations, live chats, Q&A, and demonstrations. You'll hear directly from the professionals and organizations who are working everyday to support YOU.

 

6. Downs Syndrome

·      We are pleased to advise that the incorporation of the BC Down Syndrome Centre Society is now complete !  We have updated our website  www.bcdsc.org <http://www.bcdsc.org>   under the "About Us" tab to reflect our purposes and the names of our directors and members etc.  Under the new society we have also setup a proprietorship (owned by the BC Down Syndrome Centre Society) called:  Pathways of Hope Neurodevelopmental Services.  At some point we will have a seperate website for this with lots of information on neurodevelopment and how it can help those with developmental, intellectual, learning disabilities and autism.  In the meantime, those who are interested can visit these websites:  www.pathways-nd.com <http://www.pathways-nd.com>   or  www.hope-future.org <http://www.hope-future.org>    

·       Casper Lja Continues to inspire and educate people on his Journey across Canada - finishing in BC summer 2010  Check out the blog!

·       Down Syndrome Buddy Walk  Saturday, September 25th. Enjoy local entertainment and a delicious lunch.  For more details and to pre-register contact:  or www.fvdss.org Early Bird cut-off deadline is September 18th.

7.  FASD

·      International FASD Awareness Day  September 9, 2010  What will you do to promote awareness of Fetal Alcohol Spectrum Disorder? Will you pledge to support a pregnant friend? Will you remind women of child bearing years of the dangers of drinking and having unprotected sex (when 60% of all pregnancies are unplanned) Will you let women know that alcohol not only crosses ...the placenta but is present in breast milk as well? Will you pledge to stay off alcohol for the entire pregnancy (and subsequent breastfeeding) with your pregnant friend?
Will you learn more about FASD yourself and know that the majority of those affected have no visible signs of prenatal exposure?Will you as a birth mom stand up and admit your alcohol consumption, knowing we are NOT here to judge, only to help and by admitting you are helping your child receive the proper diagnosis and therefore, help.What will you do?

·      On February 1, 2010, CLBC implemented the only dedicated program in North America for adults who have significant challenges with day-to-day living, and are diagnosed with Fetal Alcohol Spectrum Disorder (FASD) or Autism Spectrum Disorder (ASD)

·      3rd Annual FASD "Creating Change" Fall Conference: FASD Collaboration Roundtables Oct 22nd and 23rd, 2010 at Douglas College New Westminster Campus. For more information and registration, click here.

 

8.  Ministry Information

 

Ministry of Children and Family Development: Responsible for providing a range of services and supports for children and youth with special needs and their families.

·      Transformation update

·      MCFD-Framework for Action:  

The ‘Transition Planning & Resource Guide for Youth with Special Needs and Their Families':

‘Support Guide for Transition Planning for Youth with Special Needs':

Parents' Handbook: Your Guide to Autism Funded Programs':

the Fact Sheet, describing the  MCFD Funded Services and Supports (updated August 2010):

 

Community Living British Columbia: Responsible for delivering services and supports for adults with developmental disabilities

·        Eligibility Fact Sheets in different languages!

·      The Citizen - August Edition 2010

 

Ministry of Housing & Social Development: Responsible for education and support payments, work programs, bus passes and health and dental benefits for persons with disabilities.

 

9. Education

·      15 things my teacher needs to know  - download article here! 

·      Beginning a new school year for children with autism  Another school year was about to begin. The teacher and all her students were moving to a brand new school. That meant new surroundings, a different classroom, different students and new teachers. For many children, a change like this would be a bit scary in even the best of circumstances. For the children in room 103, all of these changes could easily produce a lot of anxiety.

·       How to Give Students More of What They Want So They Can Get What They Need  The start of a school year is clean slate. For a period of time, both teachers and students focus on the possibilities for success. We know that schools and teachers are feeling enormous pressure to show achievement gains for their students, particularly in reading and mathematics and other state assessments. "At grade or above grade" is the new mantra and can quickly become the only measure of teacher effectiveness and student success. We need to be vigilant that our focus this year on school success is inclusive of this critical benchmark, but includes more of what students and parents define as teaching success. Read more at link above.

·      Helping ADHD Students Get Organized for School  For ADHD children, the ability to organize, prioritize, and manage time is impaired by neurological deficiencies that make it hard for them to stay on top of school assignments. Find out how to help ADHD students master organization at home and at school.  Read more at link above.

·      Ministry of Education's TIPS FOR A SUCCESSFUL SCHOOL YEAR

·      Back-To-School Supplies Guide.  Buying school supplies is an annual end-of-summer tradition. It's also an opportunity to look for safer products for your children and their classrooms. The good news is that with a little time and attention, a backpack full of non-toxic school supplies is in reach

·      Back to school Shopping Tips

 

10. Medical

·      New Study Finds New Connection Between Yoga And Mood  Researchers from Boston University School of Medicine (BUSM) have found that yoga may be superior to other forms of exercise in its positive effect on mood and anxiety. The findings, which currently appear on-line at Journal of Alternative and Complementary Medicine, is the first to demonstrate an association between yoga postures, increased GABA levels and decreased anxiety.

·      Defeat Autism Now! International Clinicians

·      Complex child magazine Click here for the August Edition

 

  11. Policy

 

12. Workshops & Training

·      Hey, My Brain Doesn't Work That Way: Understanding Sensory Processing, Promoting Self-Regulation and Supporting Stress Management Presenter: Marc Landry, Occupational Therapist

   Saturday, October 16, 2010 9:00am - 3:00pm South Arm Community Hall

9020 Williams Road Richmond, BC$35.00* (Lunch Included) For information please contact Aman Pannu at 604-279-7049. Sponsored by Richmond Supported Child Development Program and the South Arm Community Association.

·      POSITIVE BEHAVIOR SUPPORTS IN TIMES OF CRISIS Workshop Presenter: Dr. Paul Malette from CBI Consultants

A one day workshop on September 17, 2010 from 8:30 a.m. - 4 p.m. that

is intended to help people and agencies supporting people with intellectual

disabilities with behavioral issues in times of crisis. REGISTRATION IS $50 PER SEAT. PLEASE MAKE CHEQUES PAYABLE TO BACI. To Register call 778.227.0161 or email kevin.lusignan@gobaci.com .The workshop  is at the Burnaby Association for Community Inclusion at 2702 Norland Avenue

·      ABA Learning Centre is holding our tri-annual training sessions starting September 9th. These workshops are great to sharpen up your ABA skills in order to work even more effectively with your child. Alternatively, if you have a BI who might benefit from additional training, this is a great opportunity that is covered by your Autism Funding. Depending on the set-up fee parents paid, these workshops may be available to you free of cost. Please feel free to call or e-mail me at any time if you would like to check on this information.  If you would like to register, go to our website www.abacentre.ca <http://www.abacentre.ca/>  and under the "Training" section fill out the registration form for one or all of the workshops: All workshops run from 6:00pm to 9:00pm. 

·      Autism Canada Foundation's CHANGING THE COURSE OF AUTISM  Friday, October 1 and Saturday, October 2, 2010

MOUNT ROYAL UNIVERSITYRoderick Mah Centre of Continuous LearningCalgary, Alberta

·      Career Development for Youth and Adults with Disabilities on September 14 - 27, 2010.

·       Health and Wellbeing in Children, Youth, and Adults with Developmental Disabilities: Autism, Intellectual Disabilities and Other Neurodevelopmental Disorders Pre-Conference Workshops: September 29, 2010 Main Conference: September 30, October 1, 2010 The Coast Plaza Hotel & Suites Vancouver, BC, Canada

·      DAVID PITONYAK in Vancouver September 30,2010

Beyond "Behaviours" - Supporting Competence, Confidence and Well-being Spectrum's 101 Friends Personal Support Networks project is excited to once again host David Pitonyak in Vancouver. Difficult behaviours result from unmet needs.  This workshop examines seven quality of life indicators that are often missing in the life of a person who experiences our services.  Based on the idea from Jean Clarke that a person's needs are best met by people whose needs are met, this day-long workshop examines strategies for supporting not only an individual who experiences disabilities but also the needs of his or her caregivers.9 - 4:30, Sept 30th, 2010 Vancouver Unitarian Church at 949 West 49th Avenue$100.00 including lunch.  To register, judy@spectrumsociety.org or 604-323-1433 or online at http://www.spectrumsociety.org/psn/pages/kendrickjune2010.aspx

·      Transforming Parent-Child Interaction with Positive Behaviour Support Presented by: Joseph Lucyshyn, Ph.D Friday & Saturday, December 3 & 4, 2010 - Vancouver

·      Oct 2nd, Vancouver: a co-hosted even by Vela, 101 Friends and Spectrum. Celebrating Stories of Community Living - 4 events in one! Crafting, Sharing and Learning!  "I hope, wherever you come from, there is someone who holds your story.  Someone who remembers you when you were knee-high to a grasshopper. Being known is critical to our well-being. Having our stories held and told by others gives us a sense of place in the world, a sense of belonging, what Pema Chodron has called, ‘the good ground.'"  from "Who Holds Your Story" by David Pitonyak. We're thinking we don't get together enough to just talk and share!   Please join us for a day co-hosted by the Vela Microboard Assocation, the 101 Friends Personal Support Networks project and Spectrum

·      THE RIPPLE EFFECT October 21, 2010 Come to beautiful Whistler for this exciting and informative retreat sponsored by BCACL especially designed for family members supporting a child with special needs or adult with a developmental disability. If you are committed to making communities more inclusive and welcoming and want to learn more about the community living movement, download the flyer for more information.

·      Best Practices: High School Transitions and Inclusive Work for Students with Disabilities.  September 20 and 21, 2010 Dr. Paul Wehman of Virginia Commonwealth University will be presenting the most current research and practice on inclusive real work for real pay for students with disabilities during the high school years. Dr. Wehman is a pioneer of inclusive employment practices for students with disabilities and was voted one of the top 10 special educators of the millennium.  Read the brochure here.

·      3rd Annual FASD "Creating Change" Fall Conference: FASD Collaboration Roundtables Oct 22nd and 23rd, 2010 at Douglas College New Westminster Campus. For more information and registration, click here.

·       Speaking of Kids Conference - October 22, 2010 - HENRY WINKLER back by popular Demand!  Learning Disabilities Association of Vancouver

·      2010 Naturally Autistic ANCA Presentation October 30, 2010 UBC Square Theatre - Calling for Award Nominations and Art Submissions

·       FAMILY FOCUS CONFERENCE  "Families, a Journey of Generations Moving Mountains" October 22-24. This will be a great conference for families. Advance Program available here If you are thinking of going it is advisable to book accommodation early, as the Chateau Whistler will be a draw. Register Here

BC Association for Community Living

The deadline for scholarships to attend the 2010 National Family Conference, Families, a Journey of Generations Moving Mountains, has been extended to Wednesday, September 1, 2010

·      See All ACT Upcoming Events

·       POPARD's Introduction to Autism Spectrum Disorders: A Course for Education Professionals, Paraprofessionals & Parents. Session 1: July 26 - 30, 2010; Session 2:  August 23 - 27, 2010. Monday to Friday 9:00 am - 3:30 pm SFU Harbour Centre Campus515 West Hastings Street, Vancouver Registration is limited to 30 - Register early to avoid disappointment!

 

13. Seasonal

 

13. Other

·      BC Epilepsy News and Events  Though the sunny days can be deceiving, the end of summer is almost upon us. With that, comes the return to school. Children and adults with epilepsy can face additional challenges while pursuing their academic goals. This could include educating teachers and classmates about seizures or accessing learning support services.
The BC Epilepsy Society has great resources and services to assist in these matters. These include:

Understanding Students with Epilepsy: Tips for Teachers: A document that describes impacts of seizures on learning and gives suggestions on how to support children with epilepsy in the classroom.
Epilepsy and Seizure Information for Schools DVD: Our new DVD explains facts about seizures and epilepsy, recognizing seizures and first aid, learning difficulties and teaching strategies to assist those with epilepsy.
Epilepsy Fact Sheet: Answers common questions about seizures and epilepsy.
Seizure Types and First Aid: A concise and easy to read information sheet that outlines what seizures look like and what to do.
Learning Difficulties and Epilepsy: This document explains the relationship between learning difficulties and epilepsy, as well as, the role of assessments, Individual Education Plan strategies, and social-emotional directives.
First Aid Poster: An excellent reference for first aid for convulsive and non-convulsive seizures. 
School and Parent Partnerships: An information sheet that gives practical advice on advocacy and communication with school personnel, as well as an overview of school support services in BC.
As well, our 
Partners in Teaching program provides free educational workshops for teachers and students. This includes classroom resource kits with materials for children and teens. More information is available from our website at this page: www.bcepilepsy.com/programs_and_services/Partners_in_Teaching.aspx

·      The CAN DO List!  What should be included in the Can-List? A person's abilities, strengths, talents, and/or interests.  Stay away from things like the pincer grasp, walking, crawling, reading level, appropriate behavior, etc., that reflect medical-model thinking. (You don't include that stuff when describing your strengths, do you?) What does the person do well now or want to do? What about unique personality traits, hobbies, interests, and much more! Who should contribute to the list? The person with a disability and the family, plus teachers, friends, professionals, and/or others.

·      BC Epilepsy E Newsletter - resources for teachers and parents!

·      WHEELCHAIRS FOR KIDS 8 AND UNDER  APPLY NOW!!!   SPORT

Racing around in a sporty wheelchair is a fun and healthy activity for a child with a disability. It gives them an opportunity to challenge themselves, develop fundamental movement skills and participate in play and sport with their peers. If your child has a mobility impairment (they don't have to use a wheelchair all the time), can push a manual chair on their own, reside in British Columbia and were born prior to Jan. 1, 2002 - please take advantage of this great offer. Applications must be in by Oct. 1, 2010!

·      Parenting Special Needs Current Issue

·      Exceptional Family Magazine - current issue!

·      Welcome to the 101 Friends Personal Support Networks e-newsletter!  August Edition

 

Reach posts a variety of material in this newsletter for the information of our readers only. Reach neither endorses nor condemns this material. We urge readers to consider this information with a critical eye and to form their own opinions about its validity or applicability to their situation.

 

Pam Collins for Reach Child and Youth Development Society, Formerly known as the Delta Association for Child Development

 

Tel: 604-946-6622, ext 359,

 

If you have received this communication in error, please contact Reach by phone at 604-946-6622, and press 0.

 

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