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Subject: September 21 2010 Reach Parent Network Weekly Newsletter
: 2010-09-21 13:59:28
: 37
e Newsletter

21 September 2010 REACH Parent Network Weekly Newsletter.


To submit for our newsletter or have a question for Pam to research please contact her at or 604-946-6622 ext 359

You can sign up at the  Reach Child and Youth Development Society website to receive this newsletter directly.


1. Help a parent! Need to know something? Want to contact other parents? This is YOUR space...

The Pacific Autism Family Centre is seeking nominations for 2 or 3 parent representatives to sit on the Steering Committee for the PAFC project. The purpose of this committee is to ensure that the vision of the project is being maintained through the planning and design process. It will also address the long-term governance for the operations of the centre.
To submit a nomination, email Dana Hough at (Nominations close on October 12, 2010).

Focus Groups and Survey
For those of you who are interested in more information about the PAFC project, there will be several Focus Groups held throughout the province. There is also an on-line survey that you can participate in.

Please visit the following site for information about the PAFC:

·      Hi everyone,
I'm sending this request for info and hoping someone can help. 
A parent was referred to me by the VCH Vancouver Community Audiology program.  Her 20 year old son with multiple diagnosis was recently informed that he can no longer see his pediatric eye doctor (she didn't say whether optometrist or ophthalmologist). The office didn't refer her to an appropriate adult eye doctor (someone with experience with people who are non-verbal and who have challenging behaviours).
I found a list of optometrists and ophthalmologists in Vancouver but it's long. I don't want to give the mom 80 different people to contact just to find one person who may be appropriate.
Do you know of any eye doctors who can see this young man?  Thanks for any help!Lisa McCune,Community Developer for Infants, Children and Youth, Vancouver Coastal Health
520 West 6th Ave, room 346
phone: 604-730-7641 fax: 604-730-7660 email:

I am looking for a new psychiatrist for one of my clients.  This young man has a developmental disability, but does not meet the IQ requirements for CLBC eligibility.  He is looking to have a clearer understanding of his diagnosis, and wants to review the diagnosis he currently lives with.  He would like to find a psychiatrist who has some expertise in working with people with developmental disabilities.  My client lives in Richmond but would probably travel some distance for the right match.  Does anyone know of a psychiatrist they could recommend?  
Kerstin Grossmann
| Family Resources and Children's Respite Coordinator 604-279-8245 office   |  604-279-8714 fax
Richmond Society for Community Living

·      I'm looking for 4 individuals that would like to support my two boys with skiing through School Vancouver Adaptive Ski School .If you know anyone that can ski and willing to support both by boys for 6 weeks in Jan/Feb, please pass along their info to me.  Cyndi

2.  NEWS

·      Vancouver Board of Trade News Release on The Research Report on the Importance of Investing in ECD Investing in early childhood development, particularly before the age of five, will save governments and society millions of dollars, according to a new research report by The Vancouver Board of Trade and Justice Institute of British Columbia released this morning, Monday, Sept. 13, 2010. And timing is critical. The report makes the case: Pay now, or pay more later.

·      Why care about therapy for kids with autism?   Failure to address disorder early increases long-term cost to society One year ago, on Sept. 16, 2009, Mary Polak, the minister of children and family development, started cutting critical intensive therapy for children with autism in B.C. The results for many have been devastating. Autism is a neurological disorder. It affects the brain. It is a spectrum disorder. Those of us with it can have a wide range of both limitations and abilities. Typically we have debilitating difficulties with social relationships, which affect every aspect of our lives from childhood through our adult lives.  Read more at the link above.

·      Here is a letter to the editor from the President of Health Sciences BC

September 14, 2010

Cuts to Autism Services Cruel and Costly

·      September 16 marks a sad anniversary for children with special needs in this province. Last year on this date, BC's Children and Family Development Minister Mary Polak announced funding cuts of more than $3 million for autism services for children under age 6.

 As a result of this decision, Victoria's Queen Alexandra Centre for Child Health laid off 40 highly-trained behavioural interventionists and closed its autism behaviour intervention program. This was a program that made breakthroughs with autistic children, releasing kids from a lifelong sentence of isolation and costly supported living. Intensive behavioural interventionists collaborated with the centre's occupational therapists, physiotherapists, speech language pathologists, and other staff to make a successful, long-term experience for autistic children.

The program cost about $70,000 for three or four years of intensive treatment. That investment may seem steep, but compare this to the alternative: studies estimate that if left untreated, caring for autistic individuals over the course of their lives costs about $2 million per person.

Last year, Minister Polak claimed autistic children would still receive adequate services. However, parents say the program closure has been devastating. Families are reporting almost universal regression in the children who were cut from the program.

If Health Minister Kevin Falcon were really serious about saving money in the health care system, he'd take a look at the fiscal impact of this and other short-sighted cuts announced all over the province.

Putting aside the human impact of giving children and their families a shot at life lived to its full potential, funding early autism intervention programs saves money.  Why is the government ignoring that?

·      More community living service disruptions and staff layoffs due to CLBC cuts  The BCGEU has learned Prima Enterprises Ltd. will be shutting down its Lower Mainland operations due to funding cuts by Community Living British Columbia. Long-term group home residents and adults with complex support needs will be impacted. Additionally, nearly 50 BCGEU members will be laid off. "The community living sector is in crisis," said Darryl Walker, president of the B.C. Government and Service Employees' Union. "We're seeing these cuts, closures, layoffs and service disruptions across the province."

·      British Columbia Association for Community Living (BCACL) presented to the Select Standing Committee on Finance and Government Services as part of the provincial government's pre-budget consultations These consultations are an opportunity for the public to make their voices heard around how the provincial budget impacts children and youth with special needs, adults with developmental disabilities and their families. Read more at the link above.


 3.  Reach Child and Youth Development Society

·      2nd annual  "Celebrate the Child!  Inspire Ability is a family fun -filled, fundraising event. 

Entertainment including:  Musicians Christine Magee, Southside Vibe, Judy Henry; Neale Bacon (ventriloquist); Matt Levy(children's entertainer); Jennifer Krempien (gold medal winning para-olylmpian)

 Silent Auction

Two agencies who share similar philosophy and mission statements are partnering to put on this event:  International Child Care delivers rehabilitation services to 400 disabled children in the Dominican Republic & Reach Child & Youth Development Society does similar work in the local community serving almost 900 children with special needs

 Sat. Oct. 2,  2010  

Silent Auction viewing from 5:30  

Concert at 6:30

Tsawwassen Alliance Church   4951   12th Avenue    Tsawwassen

 Tickets:  Children  $5        Adults  $15          Family  $35

Tickets available from:  Albany Books in Tsawwassen,  Southcoast Casuals in Ladner,  Reach office in east Ladner or  reserve on-line at

For more information contact :
Su. Wieczorek, Fundraising Coordinator  604.946.6622 ext. 339

·      Positive Parenting; The Basics and Beyond! A two-evening interactive workshop on creating a positive, supportive atmosphere for your family interactions. You will learn positive strategies for dealing with difficult behaviour, how to diffuse power struggles, offer appropriate choices, be consistent, provide consequences, model appropriate behaviour and much ...more. Presented by Reach Child and Youth Development Society and facilitated by Camille Netherton and Pam Collins. At the Surrey Conference Centre 400 - 9260 140th Street Surrey Room #3 From 6:00pm - 9:00pm on September 29th and October 6th 2010. Cost : $20.00 per person Coffee, Tea, water and snacks will be provided. To register call 604-946-6622 ext 343 , fax 946-6223 or email


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·      Autism's First Child - The Atlantic As new cases of autism have exploded in recent years-some form of the condition affects about one in 110 children today-efforts have multiplied to understand and accommodate the condition in childhood. But children with autism will become adults with autism, some 500,000 of them in this decade alone. What then? Meet Donald Gray Triplett, 77, of Forest, Mississippi. He was the first person ever diagnosed with autism. And his long, happy, surprising life may hold some answers.  See the article and video at the above link!

·      L.A. Woman Brings Hope to Families With Autistic Children While teaching in an elementary school in Maryland, Lauren Henry noticed that the children on the autism spectrum being mainstreamed were completely overwhelmed in the classroom. "All the visual excess due to the ever-increasing demands of teachers were magnified and therefore exacerbating the already excessive stimulation within their surroundings," she explained to me in a recent interview. Additionally, she explained, she saw an increased amount of agitation and anxiety in these children when they were separated into classrooms that were gray in color and had only one desk and chair, devoid of any warmth or visual interest. Lauren knew that these children could have a better experience. With a background in child psychology, education and art, she decided to do something about it. Read more about BRUSH OF LOVE at the above link.

·      Misfolded Neural Proteins Linked To Autism Disorders  An international team of scientists, led by researchers at the University of California, San Diego, has identified misfolding and other molecular anomalies in a key brain protein associated with autism spectrum disorders.

·      When Autistic Children Become Adults The question that haunts every parent of a child with autism is, What will happen when I die? This reflects a chronological inevitability: children with autism will grow up to become adults with autism, in most cases ultimately outliving the parents who provided their primary support. Read more at the link above.

·       Social Thinking and Applied Behavior Analysis - not "black and white" by Michelle Garcia Winner and Chris Abildgaard   There is a tendency when exploring treatment options to build walls and think in the black and white. As we have moved from developing treatment with people with classical autism to exploring and developing treatments for the entire autism spectrum and related disabilities, we have to shift from thinking there is one way to treat by embracing a range of approaches to better meet the range of challenges our students and adults experience across the "spectrum." Read the whole article at the link above!

·      The Vancouver International Film Festival is excited and proud to have the opportunity to show "A Mother's Courage - Talking Back to Autism" at this year's festival. It was shown earlier this year on HBO, and we are lucky enough to be able to show the film three times during our 16 day festival.
The film will be shown:
Thursday, October 7 @  3:30pm  - Granville Theatre #5
Sunday, October 10 @ 3:45pm    - Vancity Theatre
Thursday October 14 @ 6:00pm  - Granville Theatre #5
Click here to see the trailer.
For Information about the Vancouver International Film Festival click here.

·      It has come to the attention of the ABA Support Network that many people (interventionists and consultants) have not been paid in a timely manner by the Autism Processing Unit. One interventionist told me she has contacted the APU twice, over July and August, and still has not been paid. She has been threatened with eviction. We will be meeting with our MLA/ Ministers shortly and would be grateful if anyone who has been adversely affected by this change from individualized to invoice funding. While you do not have to include too many personal details in your accounts, it would be helpful to know how long you have been waiting and if (how many times) you have contacted the APU. 

We would like to include these personal accounts at the meeting. 
Please contact the ABA Support Network and send your comments to:

·      FOR IMMEDIATE RELEASE: August 26, 2010

Naturally Autistic® ANCA® announces its Inaugural International Naturally Autistic® ANCA® Awards
UBC Robson Square Theatre, Vancouver B.C., October 30, 2010 ˆ Our Naturally Autistic® ANCA® AWARDS have been created to honour the accomplishments of autistic individuals, their supporters and organizations that support autistic people. Our inaugural event will showcase entries from three countries ˆ Canada, U.S.A and Australia.  
The selected Award Recipients and the selected Art Submissions will be showcased at UBC Robson Square Theatre on October 30, 2010. They will also be showcased in the Winter Issue of Naturally Autistic
® Magazine.
To view more of the Press Release and samples of the art submissions please click on this link <>

·      Walk Now for Autism Speaks This is a family-friendly FUNdraising event so bring the whole family along. There are activities for children of all ages, resources for families, light refreshments and entertainment.
WHEN: Sunday, September 26, 2010, Registration starts 8:30 AM, Walk 10:00 AM
WHERE: Nat Bailey Stadium, Vancouver
COST:  There is no registration fee but participants should bring donations, see the link for more information about fundraising and team-building.




6. Downs Syndrome

·      VANCOUVER INTERNATION FILM FESTIVAL PRESENTS:  ME, TOO  Boy meets girl. Boy falls in love. Boy has Down syndrome. Álvaro Pastor's sublimely intelligent drama poses profound questions about perception and prejudice with subtlety and humour. But it is the love story at the centre of the film that defies expectations. Winner, Audience Award, Rotterdam 2010

Sat, Oct 9th 6:40pm   Empire Granville 7 Th 4

Thu, Oct 14th Noon Empire Granville 7 Th 4

·       Down Syndrome Buddy Walk  Saturday, September 25th. Enjoy local entertainment and a delicious lunch.  For more details and to pre-register contact:  or Early Bird cut-off deadline is September 18th.

7.  FASD

·      3rd Annual FASD "Creating Change" Fall Conference: FASD Collaboration Roundtables Oct 22nd and 23rd, 2010 at Douglas College New Westminster Campus. For more information and registration, click here.


8.  Ministry Information


Ministry of Children and Family Development: Responsible for providing a range of services and supports for children and youth with special needs and their families.

·      Transformation update

·      MCFD-Framework for Action:  
The ‘Transition Planning & Resource Guide for Youth with Special Needs and Their Families':
‘Support Guide for Transition Planning for Youth with Special Needs':
Parents' Handbook: Your Guide to Autism Funded Programs':
the Fact Sheet, describing the  MCFD Funded Services and Supports (updated August 2010):


Community Living British Columbia: Responsible for delivering services and supports for adults with developmental disabilities

·      New Information Sheet about importance of Planning!

·      New Information sheet regarding Eligibility

·        Eligibility Fact Sheets in different languages!

·      The Citizen - August Edition 2010


Ministry of Housing & Social Development: Responsible for education and support payments, work programs, bus passes and health and dental benefits for persons with disabilities.


9. Education

·      When Saving a School, Pushy Parents Are a Help Teachers, parents worry lack of protests at inner-city school hurt chances of staying open.  Carrie Gelson is "triply impacted" by the Vancouver School Board's selection of schools for possible closure. Her two children attend Dickens Annex, and she has just begun a new part-time job teaching at Carleton Elementary. But it's Seymour Elementary, where she has worked as a part-time second and third grade teacher since 1995, which she is most worried about.

·      Chair of Langley School Board resigns; cites pressure from other trustees  Not even a week after Langley School Board Chair Joan Bech made a public statement promising the board would try harder to get along, Bech has decided to take her ball and go home. Bech submitted a letter of resignation to the board this morning, saying she was planning to finish her term and not run for re-election as she is moving to the Sunshine Coast, but the political climate of the board spurred her to resign before the board's first meeting next week.

·       New vision for BC education to be (partly) unveiled in October   According to an email circulating among school trustees this week, Education Ministry staff will meet B.C. board of education chairs and provincial councilors in Vancouver on Friday, October 22 to discuss the government's vision for the future. That vision includes the expansion of personalized learning, which "may bring significant changes to the provision and management of education in B.C.," says the email from Stephen Hansen, the executive director for the B.C. School Trustees' Association (BCSTA).


10. Medical

·      BEYOND THE BLUES Beyond the Blues: Depression Anxiety Education and Screening Day is an annual mental health awareness campaign made up of a series of community events held across BC. The campaign reaches various age groups, and half a dozen events each year specifically aim to reach older adults. Beyond the Blues is held annually every October during the first Thursday of Mental Illness Awareness Week. This year Beyond the Blues is October 7th.
The point of the campaign is to help people learn the signs of depression and anxiety, and related issues like mania, suicide and risky drinking. It also stresses when and how to get help, and empowers attendees to connect with local support.
Beyond the Blues events are free, anonymous and drop-in. At an event or "site," a hands-on way for people to learn the signs of depression, anxiety and risky drinking is by filling out a short screening self-test for each issue and then meeting briefly with a clinician to discuss the results and next steps. The event is about education, not diagnosis. It reaches people who are struggling as well as people who aren't and want to prevent problems. All sites feature takeaway print resources as well as helpful staff and volunteers who can address questions or concerns. Many sites also add displays, presentations or workshops, educational videos and games to encourage attendance and interaction.
Sites are held all across BC, in both rural and urban locations. Some sites hold their events at a community venue like a mall, college, library, place of worship or community centre for anyone to attend. Other sites target key population groups like youth, post-secondary students, multilingual groups, seniors or aboriginal people by bringing their sites directly to the group they want to reach.
The BC Psychogeriatic Association is proud to endorse Beyond the Blues. Please spread the word to your clients, client families, and your coworkers. They can visit <>  or call 1-866-917-HOPE to find local events.

·      Better Health, With a Little Help From Our Friends  IS your social network making you fat? Are your friends and family influencing you to smoke and drink more, or to sleep less? And if our relationships contribute to behaviors that erode our health, can social networks be harnessed to improve it? These are seminal questions in "network science" - an emerging field that examines how behavioral changes spread through social networks. By social networks, I don't mean virtual, will-you-"friend"-me? simulations, but old-fashioned, flesh-and-blood relationships. You know, people you actually see in person regularly - friends, relatives, co-workers, neighbors. Read more at the link above!

·      Complex child magazine Click Here for the September BACK TO SCHOOL ISSUE!


  11. Policy


12. Workshops & Training (in order of date)

·      Please note: Spectrum's September 21, 2010 free event with Jeff Strully, to be held at the Burnaby Association for Community Inclusion office, has had to be cancelled as Jeff was unable to travel to Vancouver. The second event set for October 19,2010 is still scheduled.

Pat Fratangelo, on Tuesday October 19th 7:00-8:30 p.m.: " What Has Been Learned From Helping People Get Lifestyles That Ideally Suit Them: The Story Of Onondoga Community Living"This event will be held upstairs at the Burnaby Association for Community Integration, 2702 Norland Ave. Burnaby, BC.   Phone: 604. 299. 7851

·      DAVID PITONYAK in Vancouver September 30,2010

Beyond "Behaviours" - Supporting Competence, Confidence and Well-being Spectrum's 101 Friends Personal Support Networks project is excited to once again host David Pitonyak in Vancouver. Difficult behaviours result from unmet needs.  This workshop examines seven quality of life indicators that are often missing in the life of a person who experiences our services.  Based on the idea from Jean Clarke that a person's needs are best met by people whose needs are met, this day-long workshop examines strategies for supporting not only an individual who experiences disabilities but also the needs of his or her caregivers.9 - 4:30, Sept 30th, 2010 Vancouver Unitarian Church at 949 West 49th Avenue$100.00 including lunch.  To register, or 604-323-1433 or online at

·       Health and Wellbeing in Children, Youth, and Adults with Developmental Disabilities: Autism, Intellectual Disabilities and Other Neurodevelopmental Disorders Pre-Conference Workshops: September 29, 2010 Main Conference: September 30, October 1, 2010 The Coast Plaza Hotel & Suites Vancouver, BC, Canada

·      Autism Canada Foundation's CHANGING THE COURSE OF AUTISM  Friday, October 1 and Saturday, October 2, 2010

MOUNT ROYAL UNIVERSITYRoderick Mah Centre of Continuous LearningCalgary, Alberta

·      Oct 2nd, Vancouver: a co-hosted even by Vela, 101 Friends and Spectrum. Celebrating Stories of Community Living - 4 events in one! Crafting, Sharing and Learning!  "I hope, wherever you come from, there is someone who holds your story.  Someone who remembers you when you were knee-high to a grasshopper. Being known is critical to our well-being. Having our stories held and told by others gives us a sense of place in the world, a sense of belonging, what Pema Chodron has called, ‘the good ground.'"  from "Who Holds Your Story" by David Pitonyak. We're thinking we don't get together enough to just talk and share!   Please join us for a day co-hosted by the Vela Microboard Association, the 101 Friends Personal Support Networks project and Spectrum

·      THE 11th ANNUAL SELF ADVOCACY LEADERSHIP INSTITUTE: To learn more about self advocacy; safety; rights; healthy relationships; become leaders in your own Community
WHEN:  October 8 - October 10,  5:00 p.m. Friday to 1:30 p.m. Sunday
WHERE: Edenvale Retreat and Conference Centre 4330 Bradner Road, Abbotsford, BC
COST:  $175.00 per person includes: 2 nights and 3 days accommodations,  all healthy meals, registration, all workshops, recreation, and FUN.
Find the flyer and a copy of the registration form at BACI Family Support and Advocacy  If you have any questions, please call and register with the Coordinator Gregg Schiller at 604-688-7001 or by fax at 604-688-7069 or by e-mail at: <>

·      Hey, My Brain Doesn't Work That Way: Understanding Sensory Processing, Promoting Self-Regulation and Supporting Stress Management Presenter: Marc Landry, Occupational Therapist

   Saturday, October 16, 2010 9:00am - 3:00pm South Arm Community Hall

9020 Williams Road Richmond, BC$35.00* (Lunch Included) For information please contact Aman Pannu at 604-279-7049. Sponsored by Richmond Supported Child Development Program and the South Arm Community Association.

·      NEW Delta Community Living Society, the Delta Family Alliance Network& the Family Support Institute Invite you to attend: Transitions - Leaving High School, What's Next?  It's never too early to plan for this transition! Leaving High School is an age-old rite of passage for young people.  For a youth with special needs and his or her family, this can be a very exciting time, but also one of uncertainty.  Beginning the process of Transition Planning as early as possible allows adequate time to prepare for adulthood. This workshop is designed to assist you in planning for your child's future by introducing some planning tools, providing a step by step checklist and sharing some in-depth information on important points. Information packages will be given to all participants. Appropriate For:  Parents and family members of students with developmental disabilities aged 15 to 19

Presenter:  Helen Stovell
Date:  Saturday, October 16th, 2010, 10:30am - 3:00pm
Venue:  Large Boardroom, Delta Community Living Society, #1-3800-72nd Street, Delta, BC V4K 3N2

Cost: $10.00 per person

To find out more information about this workshop, please contact: 

Si Stainton, Delta Community Living Society, Family Services Liaison, . 604.952.6490

·      THE RIPPLE EFFECT October 21, 2010 Come to beautiful Whistler for this exciting and informative retreat sponsored by BCACL especially designed for family members supporting a child with special needs or adult with a developmental disability. If you are committed to making communities more inclusive and welcoming and want to learn more about the community living movement, download the flyer for more information.

·       Speaking of Kids Conference - October 22, 2010 - HENRY WINKLER back by popular Demand!  Learning Disabilities Association of Vancouver

·      3rd Annual FASD "Creating Change" Fall Conference: FASD Collaboration Roundtables Oct 22nd and 23rd, 2010 at Douglas College New Westminster Campus. For more information and registration, click here.

·       FAMILY FOCUS CONFERENCE  "Families, a Journey of Generations Moving Mountains" October 22-24. This will be a great conference for families. Advance Program available here If you are thinking of going it is advisable to book accommodation early, as the Chateau Whistler will be a draw. Register Here

·      2010 Naturally Autistic ANCA Presentation October 30, 2010 UBC Square Theatre - Calling for Award Nominations and Art Submissions

·      NEW Delta Community Living Society, & the Delta Family Alliance Network Invite you to attend: Thinking in the Future Tense
Two days of practical and relevant workshops to help you plan effectively for the future of someone with a developmental disability.
Workshop 1: Saturday, November 6th, 2010, 10:00am - 2:45pm
Workshop 2: Saturday, November 20th, 2010, 10:00am - 2:45pm

Workshop 1: Wills, Estates & Trusts and Supported Decision Making
(Representation Agreement)
This seminar will answer your questions about trusts, choosing executors and guardians and the importance of planning your will. Working through the steps will better prepare you to update or write your will.  Supported Decision Making (Representation Agreement) will walk you through this powerful legal tool that allows people to designate others to represent them in their daily financial affairs and health care needs
Presenter:  Planned Lifetime Advocacy Network (PLAN)
Venue:  Scott Road Connections, Delta Community Living Society,  #105, 7953 - 120 St., Delta  
Target Audience: Parents and family members of adults with developmental disabilities.
Closing date for registration: Friday, 22nd October, 2010.
Workshop fee: $10.00 (inc. lunch & refreshment)
Workshop 2: The Registered Disability Savings Plan (RDSP) and Personal Networks
Learn about a financial tool that allows a person with a disability to save money for their future without interfering with their PWD
Learn how the federal government can contribute up to $90,000 to the plan
Understand the implications of the RDSP specific to your family's needs
Receive a Step by step guide.  Personal Networks: Understand the key elements of a social support network for your relative.Getting started on a circle of friends

Date:  Workshop 2: Saturday, November 20th, 2010, 10:00am - 2:45pm
Presenter:  Planned Lifetime Advocacy Network (PLAN)
Venue:  Scott Road Connections, Delta Community Living Society,  #105, 7953 - 120 St., Delta
Target Audience:
Parents and family members of adults with developmental disabilities.
Closing date for registration: Friday, 5th November, 2010.
Workshop fee: $10.00 (inc. lunch & refreshment).
To register for these workshops, please contact Joanne Fee, Delta Community Living Society, Human Resources & Administrative Assistant <> , 604-946-9508 ext. 222.
To find out more information about these workshops, please contact Si Stainton, Delta Community Living Society, Family Services Liaison, , 604-946-9508 ext. 230.

·      Transforming Parent-Child Interaction with Positive Behaviour Support Presented by: Joseph Lucyshyn, Ph.D Friday & Saturday, December 3 & 4, 2010 - Vancouver

·      Each year, the BC Epilepsy Society hosts Speaking of Epilepsy, a series of lectures on a wide variety of epilepsy related topics. In recent years topics have been as diverse as treatments, active living, epilepsy and learning, stress management, siblings of children with epilepsy, surgery, women's health, employment, and human rights issues. The 2010-2011 Speaking of Epilepsy lecture series includes:
October TBA What's New in Epilepsy Dr. Kevin Farrell

November 15 Epilepsy and Family Dynamics Dr. Josef Zaide and Dr. Audrey Ho

January TBA What To Do If Your Medications Fail Dr. Linda Huh

February TBA Ask the Expert Panel Discussion
April TBA
Women With Epilepsy
Anti-Epileptic Medications
June TBA
Epilepsy Research in BC                    
All lectures are held at the Chan Auditorium in the Education and Research Building at the Children's and Women's Health Centre of BC located on 4480 Oak Street at 28th Avenue. Lectures run from 7-9 pm. Please contact us at 604-875-6704 or at to reserve your seat and confirm dates. Admission is free to current members of our Society and only $10 for each lecture if you are not a member. You can take out a membership at the start of any lecture and receive free admission.

·      See All ACT Upcoming Events

·       We are pleased to announce the launching of our online education program featuring Dr. Neufeld and the faculty of the Neufeld Institute as presenters. It is our hope that by using today's internet technology, we can provide more access to this approach. Click on the above link for more information.



13. Other

·      FSI's 3rd Annual Trivia Night is on Friday, November 5, 2010 (7:30pm-10:30pm) at Marlborough Elementary School in Burnaby, BC: 
Come and join us for a night of fun, laughter, food and prizes. If you would like to donate a door or game prize, please complete the attached donation form and return it to the FSI office together with your prize. Any item would be a welcome gift to help us in our efforts to support families in communities throughout BC.  
Click here for more Trivia Night Information.  Click here for the Trivia Night prize donation form. 

·      A list of accessible businesses &resources from 2010 Legacies Now. (Thanks BC Coalition of People with Disabilities!)

·       How dogs can help heal a family dealing with disability I was going to write about what we learned at the puppy training class last night as my daughters, Chloe and Hannah, and I continue to learn how to be puppy sitters for the Pacific Assistance Dogs Society, but I've decided to tell you about what happened after class instead. 

·      By Joan Celebi: Here are some tips that have transformed mornings, for my own family and for the many families I've worked with, from chaotic and stressful to manageable and calm.  I'd love to hear your tips for great mornings too -- send me an email or post a comment at my blog!

o   1. Start your morning with a smile.  When you wake up, try to keep your worries at bay, for at least a few minutes. Smile.  Breathe deeply, stretch, and think of something you're looking forward to. 

o   2. Cushion yourself from the outside world for just a little while. Keep the TV and computer off until absolutely necessary.

o   3. Try to get up at least a few minutes before the kids. I know this isn't always easy!  But try it and you may find that your whole day goes more smoothly.

o   4. Have as much as possible done and ready the night before. Breakfasts, lunches, clothes, backpacks, purse, briefcase, keys, sunglasses, etc. !

o   5. Make a rule that everyone has to be ready to go 10 minutes early.  The margin of error allows everyone to stay calm when someone has one of those last-minute "wait, I forgot something!" moments.

o   6. Get the family smiling.  Leave little surprises for your children from time to time, such as notes on the bathroom mirror, a smiley-face sticker on their napkin at breakfast, a teddy-bear sitting in their chair, etc.  !

o   7. Stay calm, especially if your children tend to feel grumpy or anxious in the morning. Over time, your children will pick up on your peaceful demeanor, and their behavior will mimic the calm you are modeling for them.

o   8. Just as you make sure your children eat a good, nutritious breakfast, make sure YOU get a good breakfast too.

o   9. If you can, sit down together at the breakfast table for even just 5 minutes of family time, and just enjoy each other's company.

o   10. Pour on the hugs, kisses, backrubs, and compliments. Kids eat up all that happiness - it's like food for their hearts!  Learn more at

·      On a clear day you can see forever  It's fun to play tourist for a day in your own city and visit places that aren't necessarily on your regular radar. Like taking a trip up Grouse Mountain for a tour of The Eye of the Wind Turbine.  The Eye of the Wind Tour also includes a ride in the chairlift which our kids enjoyed more than the Skyride or the Eye, probably because there was nothing between us and the great outdoors and we passed wild deer grazing below us. Plus on the way down we got a birds eye view of the grizzlies sunning themselves, which is about as close to grizzlies as we like to get. Grouse Mountain Eye of the Wind Tour*:

·      Special Olympics BC Ready to Launch Youth Programs for 2010-2011
Special Olympics BC is excited to announce that for the third consecutive year the Active Start and FUNdamentals programs will be offered to communities throughout BC for young children with intellectual disabilities.
The Active Start program is designed for children between the ages of 2-6 years with intellectual disabilities to provide the opportunity to learn, practice, and showcase basic fundamental movement skills in a safe and fun environment. The FUNdamentals program is similar to the Active Start program however it is open to children between the ages of 7-11 years with intellectual disabilities and offers basic skill development in the sports of soccer, softball, track and field, and basketball.  Both programs create an opportunity for children to develop gross motor skills that will enable them to participate in sport and physical activities but also provide the environment where children can improve their self-confidence and self-esteem. The programs also offer parents/guardians the chance to establish a social network and the opportunity to learn about the importance of physical fitness, nutrition and sport.
For information on how to get involved or start a program in your community please contact Shawn Fevens at or 604-737-3055.

·      Over the next few months posAbilities is hosting an exciting array of special events and educational opportunities. The Fall line-up includes:

Can you dig it's Harvest Celebration, September 24th, from 11am- 2pm at Ridgeview Heights Garden Club, Burnaby
Team Laurel-posAbilities at the annual Walk for Autism Now, September 26th  from 8:30 to 12noon, Vancouver

 posAbilities Annual General Meeting, September 27th, from 6:00 - 8:00 pm., at the Executive Inn, Lougheed Hwy, Burnaby

A workshop on CLBC's Employment Policy, October 4th from 6-8:30 pm in Burnaby
The "Big Picture Award Gala" on October 13th,a part of the Vancouver International Film Festival*

 6th Annual Art Show for B.C. Artists with Developmental Disabilities, October 14th from 5-9pm, Heritage Hall, Vancouver

 Securing the Future: Personal & Financial Planning for Families - a six week series, beginning October 14th in Burnaby.*
For more information about these events, please visit our home page, <> where you will find an event calendar, links to information about featured programs and initiatives and downloadable posters, or print off the attached documents for easy reference.

·      BC Epilepsy E Newsletter - CLICK HERE!

·      Parenting Special Needs Current Issue -

·      Disability is Natural - current newsletter - check out the article on how to PRESUME ABILITY

·      Exceptional Family Magazine - current issue!

·      101 Friends September E Newsletter!

·      Handle Institute - Current newsletter


Reach posts a variety of material in this newsletter for the information of our readers only. Reach neither endorses nor condemns this material. We urge readers to consider this information with a critical eye and to form their own opinions about its validity or applicability to their situation.


Pam Collins for Reach Child and Youth Development Society, Formerly known as the Delta Association for Child Development


Tel: 604-946-6622, ext 359,


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