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Subject: November 10 2010 Reach Parent Network Weekly Newsletter
: 2010-11-11 16:04:08
: 44
e Newsletter

November 10 2010 REACH Parent Network Weekly Newsletter.


To submit for our newsletter or have a question for Pam to research please contact her at or 604-946-6622 ext 359

You can sign up at the  Reach Child and Youth Development Society website to receive this newsletter directly.


1. Help a parent! Need to know something? Want to contact other parents? This is YOUR space:


·      My son is turning 19 in January and we are deciding between two funding options:
CSIL #1 wherein my son would be the employer and self-direct his care, or
CSIL #2 wherein we form a society of 5 people to direct his care.
He is perfectly capable of making decisions, wants to be in charge and meets the criteria of #1 however we are wondering if there are any longer term disadvantages to that option. Ideas anyone?  Respond directly to

·      We are welcoming some new subscribers to our listserve who have children with Down syndrome.  As many of you already know, this list has been limited to parents and caregivers of children and adults with Down syndrome so that we can specifically discuss the needs of individuals with Down syndrome.  As you know too our children face not only intellectual challenges but also physical challenges and some sensory and behaviour issues.  We also have quite a few families who have children with a dual diagnosis of DS and Autism.  We do allow other participants to our listserve who are working/advocating within the disability community for improved benefits for those with Down syndrome.
We would like you to encourage other families you know in this province who have children with Down syndrome to join our listserve.  We are currently at 99 subscribers province-wide.  The more participants we have the better as we move forward in our attempts to obtain further services and funding for individuals with Down syndrome.
Those wishing to join should email me at with their name, email address, the age of their child or their occupation and where they reside in our province. Also, anyone may join us on Facebook:  the BC Down Syndrome Centre Society Rosalie Newell-Wagner, Director,BC Down Syndrome Centre Society>    email:

·      I was hoping that you could send out a request to see if anyone has information on photosensitive seizures.  My daughter has just been diagnosed with them and I am trying to find out as much information as possible to try and minimize their frequency.   Any information would be appreciated.  Please reply directly to

·      Hello Families! Si Stainton has arranged with the corporation of Delta Park and Rec. to be allowed to distribute the Leisure Card for adults with developmental disabilities. The leisure access program provides an opportunity for Delta residents in financial need to participate in Parks, Recreation and Culture drop in activities for just $5 per person. One your child's application has been successful you will be able to receive a 6 month general facility admission pass. Please contact her if you wish to have an access card for your adult son or daughter. Si Stainton, Family Services Liaison (Monday - Wednesday) Delta Community Living Society' 604 952 6490 or


2.  NEWS 

·      Parental support.  One of the best ways to predict whether children will succeed in school is to look at parental involvement. Various studies have identified parents' expectations and engagement as the most significant contributors to a child's achievement. When parents care, so do their children. Given this research, the creation of school councils in Ontario 15 years ago -- made up mainly of volunteer parents -- would seem like an obvious way to get mom and dad more involved in education and, therefore, boost student achievement. It hasn't worked out that way. Click here to read more

·      Where Is BC's Childcare Program?  Premier Gordon Campbell's ill-received address on Oct. 27 dedicated just over three minutes to education, with only a fleeting reference to early childhood education: a promise of 100 new StrongStart centres in the province. But he was noticeably quiet about the long-awaited pre-kindergarten program for three and four-year-olds he promised two years ago. Click here to read more!

·      Click Here for a direct link to the Delta Police website and updates Police continue to investigate the homicide of homicide of 15-year-old Laura Szendrei. There are no new developments to report. Delta Police will remain highly visible in and around North Delta Schools, interacting with parents and students. The Delta Police Emergency Command Vehicle will remain in the area of 109B and 82 Avenue for the next several days while Police continue their search of the immediate and surrounding areas.


 3.  Reach Child and Youth Development Society


Reach News

o  Workshop Presentation: Emotional Regulation All of us are on a journey to emotional regulation.  For some of our children this can be a difficult road.  One of the greatest gifts we can give our children is an understanding of their emotions and how to cope when their emotions seem too big!  Come and learn some simple strategies to teach them how they can control their bodies and their feelings.

Facilitated by: Pam Collins

Appropriate for parents of children aged 3 - 19

Date:                  Thursday, November 18, 2010

Time:         6:30 - 8:30 pm

Location:         Reach Child and Youth Development Society

                  #3 - 3800 72nd Street, Delta, BC        

Register by email:

phone:  604-946-6622, ext 343   fax: 604-946-6223


Reach on Facebook

Reach on Twitter



·      CTV news link on IBI funding in Ontario. Click Here to see the news video.

·      New Genetic Risk Factor Revealed For Both Autism And Schizophrenia.  ASDs include a range of neurodevelopmental conditions that are being diagnosed at an increasing rate. The Center for Disease Control and Prevention estimates that ASD currently affects 1 in 110 people. The prevalence of schizophrenia, with a diagnostic rate of 1 in 100 to 1 in 20, is similar. ASD and schizophrenia affect males more often than females, and both are thought to have a strong and overlapping genetic component. "The genetic overlap between ASD and schizophrenia, both of which have a high heritability, has been the focus of several recent studies; however, no single specific genetic cause accounts for more than 1%-2% of cases" says Dr. Daniel Moreno-De-Luca, the lead author of the study. Click here to read more.

·      Autism-risk Gene Rewires The Brain In A Way That Disrupts Learning And Language Acquisition.  Researchers at UCLA have discovered how an autism-risk gene rewires the brain, which could pave the way for treatments aimed at rebalancing brain circuits during early development, according to an article published in Science Translational Medicine. Click here to read more.

·      Take the Sensory Challenge. Are you ready? Good. Close your eyes and imagine this:

You're in a room with a group of people. You're trying to listen to the speaker but there is a buzz in your ears. It's so loud you wonder if there's a fly in your head. The lights in the room are continually flickering. You keep blinking to avoid the flashes. Now you have a headache.

Open your eyes. How did you feel? What did the speaker say?

This is the effect fluorescent lights have on some people with autism Click here to continue the CHALLENGE!

·      The Ministry of Children and Family Development would like to invite parents, service providers and community stakeholders in your region to a
Community Consultation Session for the Development of a New
Provincial Outreach Program(s) for Young Children with Autism Spectrum Disorder

November 9th, 2010
7:00 p.m. to 9:00 p.m.

The Campbell River Museum, Lobby
470 Island Highway, Campbell River, BC

In September 2009, the Ministry of Children and Family Development announced that a minimum of $1 million annually would be directed toward the creation of a new Provincial Outreach Program(s) for Young Children with Autism Spectrum Disorders.  The goal is to improve access to high-quality, community-based intervention services and supports and enhance local opportunities for education, support, and training especially in rural and remote communities.
MCFD is interested in hearing from you regarding your community priorities and how to build upon the existing strengths in your region.
Please R.S.V.P. via e-mail to <>
(RSVP appreciated, but not required)

*** If you are unable to attend, you can also provide feedback by completing a survey which will be available through ACT - Autism Community Training's website <> by the end of November.

·      Japanese language educational seminar for families: Access to Support and Government Services for Individuals with Autism or other Developmental Disabilities
To register or for more information contact us: email or fax (604) 248-0480 | or
call (778) 891-5535 between 10-11am or 9 to 10pm. The deadline to register is November 12, 2010.
Hosted by: Nikka Health Care Society and posAbilities
Supported by: Consulate General of Japan
Rainbow Island play/support group for Japanese children with autism.
Date: Friday, November 19, 2010
Time: 9:45 a.m. - 4:00 p.m.
Location: Japanese Consulate, 1177 West Hastings St., Vancouver
Cost: $15/adult, with Japanese lunch included.
*Unfortunately we are not able to accommodate children at this event.

·      Fraser Valley Autism Society Our next meeting is Wednesday, November 10 from 7 to 9 p.m. at the Abbotsford office of the Fraser Valley Child Development Centre, 2nd floor 32885 Ventura Avenue, Abbotsford.
Jane Gladman from the FVCDC will be giving a presentation on effective advocacy for your child.

·      Richmond ASBC Parents Group Meeting
Social Thinking and Language Issues by Jenny Gorton, SLP.Before returning to Vancouver to join the ABLE Development Clinic, Jenny was an integral member of Teach Social Silicon Valley, previously known as the Centre for Social Thinking. Working closely with Michelle Garcia-Winner, Jenny provided treatment for social and language deficits in clients with Asperger's Syndrome and other Autism Spectrum Disorders.
Date: Monday, November 29, 2010
Time: 7-9pm
Location: Tyee room at Steveston Community Centre -
4111 Moncton Street, Richmond
Coffee/Tea and snacks provided. Donations are greatly appreciated.
Please RSVP to
Paul (, so we can prepare for handouts.

·      Autism SpeaksTM Launches Puzzlebuilder, The First-of-Its-Kind Social Network Driven Fundraiser To Help The One In 110 Children Struggling With Autism.  Autism SpeaksTM, North America's largest autism science and advocacy organization, today announced the launch of Puzzlebuilder, the first-of-its-kind social network driven fundraising campaign that enables people of all ages to help solve the puzzle of autism -- the fastest-growing serious developmental disorder in the U.S. Anyone can become a Puzzlebuilder by uploading their favorite photos to create their own digital puzzle or by buying a piece of a participating celebrity, friend or family member's puzzle. Each puzzle piece is $10 and all funds benefit Autism Speaks. The campaign launches October 28, 2010 and will run through the end of the year. Click here to learn more about it.



·      ADHD Tied To Obesity In Adulthood.  Researchers who followed more than 15,000 young Americans from adolescence into adulthood found that the symptoms of attention-deficit/hyperactivity disorder (ADHD) in childhood are linked to an increased risk of obesity in adulthood, and that the greater the symptoms, the higher the risk.  Click here to read more.

·      Trust Doctor Reveals Impact Of Untreated ADHD On Costs Of Crime.  Alarming statistics from a recent paper published by Dr Susan Young, Consultant Clinical and Forensic Psychologist at Broadmoor Hospital, West London Mental Health Trust, reveal the true extent of untreated ADHD as an underlying cause of crime.  Click here to read more.

·      Improving Classroom Behavior: Help ADHD Children to Stop Fidgeting.  How teachers and parents of children with ADHD can help them fight the fidgets and concentrate better at school and at home.  Click here to read article.

·      Shuteye Strategies for ADHD Children.  Getting a good night's sleep can be a big problem for children who have attention deficit disorder (ADD ADHD). Research has shown that 20 percent of these children have difficulty falling or staying asleep. That's three times the rate among children who don't have the condition. Click here to read more.

·      New Data Analyses On CONCERTA® Pediatric Treatment Include Insight On Handwriting Performance And Attention In ADHD.  Data presented at a major medical meeting include findings that demonstrate improved handwriting performance in children with Attention Deficit Hyperactivity Disorder (ADHD) when taking CONCERTA® (OROS® methylphenidate HCl Extended-Release Tablets CII) compared to placebo. This data, which was presented by McNeil PediatricsTM, Division of Ortho-McNeil-Janssen Pharmaceuticals, Inc., is one of two sub-analyses presented today on pooled data from two randomized, double-blind, placebo-controlled studies examining CONCERTA® efficacy in patients in simulated classroom environments. Click here to read more.

·      Click HERE for a free issue of ADDITUDE Magazine!


6. Downs Syndrome

·      Downs Syndrome Research Foundation Events:

o   November 16, 2010

Up the Down Market Dinner Montreal

The 8th Annual Montreal Up the Down Market Dinner known as "Action 21" will be held at Le Centre Sheraton Hotel on Tuesday, November 16th. ...more

o   2010 DSRF Christmas BreakfastThe 13th annual Christmas Breakfast will be taking place December 3, 2010. ...more


7.  FASD

·      Fetal Alcohol Forum - Issue 4 - November 2010

·      Effects linger for children of women who drink during pregnancy.  There is no known safe amount of alcohol to drink while pregnant, health experts say. Because about 60 percent of women do not know they are pregnant at four weeks' gestation, a critical period in organ development, the CDC warns women to not drink alcohol if they are sexually active and do not use birth control. Click here to read more.

·      Growing Together: A Retreat for Parents of People with Fetal Alcohol Spectrum Disorder. You are invited to our third annual parent retreat for adoptive parents of children, youth, or adults who are suspected of having or have been diagnosed with a Fetal Alcohol Spectrum Disorder (FASD). As a parent-led organization, we know the importance for parents to have a chance to come together with those who understand and care.When: January 29, 2011   8:45am - 5:00pmLocation: Executive Airport Plaza Hotel, Richmond, BCCost: Early (by Dec. 15): $35 Individual  $60 Couple Regular: $40 Individual  $75 Couple

Optional Networking Dinner: $15For more information, contact Tanya Loretto 604-266-1220 or To download registration information, click here.

·      The Asante Centre:15 hour Training for families and caregivers - "FASD and Communication Disability" November 9, 18, 25 and December 2 and 9.  Many youth with FASD also have an underlying language disability. With communication limitations, in addition to other brain deficits, these youth are at greater risk in the justice system. So often their rights are compromised because they are not able to fully understand the legal processes. This training opportunity is designed for families and caregivers supporting children and youth up to the age of 18.There is no charge for this training. However, all participants are asked to commit to attending the entire 15 hours training (five sessions), and offer constructive feedback for the final revisions of the curriculum. Click on the link above to find out more.


8.  Ministry Information


Ministry of Children and Family Development: Responsible for providing a range of services and supports for children and youth with special needs and their families.


Community Living British Columbia: Responsible for delivering services and supports for adults with developmental disabilities


o      CLBC Newsletter October 2010  THE CITIZEN



Ministry of Housing & Social Development: Responsible for education and support payments, work programs, bus passes and health and dental benefits for persons with disabilities.


9. Education

·      It takes money to help students.  It would be nice to believe Premier Gordon Campbell will remain committed to the pledge that within five years every Grade 4 student will meet the expected standards for reading, writing and numeracy. A serious effort to reach the goal would have tremendous benefits, for students, the province's future competitiveness and in moving us to a more just, equitable society. But the government will have to do much more to show this is not just another short-lived political enthusiasm. Read more here.

·      Budget choices unbalance my son.  Open letter to Monica Pamer, superintendent of Richmond schools:  This letter comes to you out of deep concern over the quality and quantity of educational support being made available to our son, Reid Scally, this school year. On Oct 4, we met with the school-based team to discuss Reid's IEP (individual education plan) goals and objectives. It was at this time we were first told that Reid's educational assistant support had been significantly reduced to a level we would classify as limited and intermittent. We find this situation unacceptable to meet our son's educational needs and negligent in meeting your obligations to him as set out by the Ministry of Education's Special Education Services Guide and contrary to the Developmental Objective of Student Success defined by the Richmond Board of Education. Click here to read the full letter.

·      At today's meeting of Vancouver's Special Ed Advisory Committee, we discussed recent complaints where parents had been told by their principal that their child with special needs would not be allowed to repeat Grade 12 (i.e. stay in school until age 19)
Vancouver's Director of Special Education stated that this is NOT consistent with district policy - i.e. the district does and will continue to allow children with special needs to attend school until and including the year they turn 19.
So if any other parents have this concern, please contact us or contact the Director of Special Education in Vancouver for assistance in ensuring that your child is able to stay in school until the year in which she or he turns 19.
Please share this with other parents who may have been concerned about this - the problem was due to one principal being misinformed about the VSB's policy on this issue.
Please continue to share concerns with us if you are not able to resolve them at your school - in some cases like this, problems can be easily resolved simply by speaking to the right officials.


10. Medical

·      Does Adolescent Stress Lead To Mood Disorders In Adulthood? Stress may be more hazardous to our mental health than previously believed, according to new research from Concordia University. A series of studies from the institution have found there may be a link between the recent rise in depression rates and the increase of daily stress. Click here to read more.

·      Research Hopes To Uncover Causes Of Peanut Allergy.  An innovative study investigating whether high environmental exposure to peanut is a risk for developing peanut allergy is being run at the Department of Paediatric Allergy, King's College London School of Medicine. Click here to read more.

·      Planning for a Healthy BC Just released this month: BC's new, 10-year plan for mental health promotion and substance abuse prevention. Called Healthy Minds, Healthy People, the plan sets out a vision, action plan and targets for improving the mental health and well-being of all British Columbians over the coming decade. A cross-ministry endeavour by the Ministry of Health Services and the Ministry of Children and Family Development, Healthy Minds, Healthy People is based on community consultation, evidence-based research and practice and the national mental health framework, and emphasizes the importance of early intervention programs, "including those that focus on resiliency building for parents, children and youth".

·      Force Society For Children's Mental Health Click on the link to find out about New monthly parent information and network sessions. Sessions will be offered through in person, teleconferencing and media site. They offer:

o    Orientation to Child and Youth Mental Health Services

o    A Guide for Families.  This 56 page guide covers everything from where to go for help to relevant legislation.

o   A Child with an Intellectual/Developmental Disability and a Mental Disorder

o   A Guide for Teachers

·      Complex child magazine Click Here for the November Home Modifications Issue!


  11. Policy


12. Workshops & Training (in order of date)


·      An educational seminar with Japanese translation for families who have children with autism or other developmental disabilities.  This is a unique opportunity for the Japanese community to learn how to access support and government services for their family members with autism or other developmental
WHEN:  Friday, November 19, 9:45 AM - 4:00 PM
WHERE:  Japanese Consulate, 1177 West Hastings St., Vancouver
COST:  $15/adult, with Japanese lunch included.
RSVP:  Please see THE FLYER to find out how to participate.  

·      Delta Community Living Society, & the Delta Family Alliance Network Invite you to attend: Thinking in the Future Tense
Workshop 2: The Registered Disability Savings Plan (RDSP) and Personal Networks
Learn about a financial tool that allows a person with a disability to save money for their future without interfering with their PWD
Learn how the federal government can contribute up to $90,000 to the plan
Understand the implications of the RDSP specific to your family's needs
Receive a Step by step guide. 
Personal Networks: Understand the key elements of a social support network for your relative. Getting started on a circle of friends
Date:  Workshop 2: Saturday, November 20th, 2010, 10:00am - 2:45pm
Presenter:  Planned Lifetime Advocacy Network (PLAN)
Venue:  Scott Road Connections, Delta Community Living Society,  #105, 7953 - 120 St., Delta
Target Audience:
Parents and family members of adults with developmental disabilities.
Closing date for registration: Friday, 5th November, 2010.
Workshop fee: $10.00 (inc. lunch & refreshment).
To register for these workshops, please contact Joanne Fee, Delta Community Living Society, Human Resources & Administrative Assistant <> , 604-946-9508 ext. 222.
To find out more information about these workshops, please contact Si Stainton, Delta Community Living Society, Family Services Liaison,, 604-946-9508 ext. 230.

·      The Asante Centre:15 hour Training for families and caregivers - "FASD and Communication Disability" November 9, 18, 25 and December 2 and 9.  Many youth with FASD also have an underlying language disability. With communication limitations, in addition to other brain deficits, these youth are at greater risk in the justice system. So often their rights are compromised because they are not able to fully understand the legal processes. This training opportunity is designed for families and caregivers supporting children and youth up to the age of 18.There is no charge for this training. However, all participants are asked to commit to attending the entire 15 hours training (five sessions), and offer constructive feedback for the final revisions of the curriculum. Click on the link above to find out more.

·      Supporting Your Child's Special Education: A Parent Workshop sponsored by the Learning Disabilities Association - South Fraser
With Cathie Camley
Sunday, November 14, 2010

9 am to 3 pm
LDAFS Resource Centre, 201-13766-72 Avenue, Surrey
$30 for full-day workshop; $25 LDAFS members
Please register for this workshop at 604-591-5156.
Parents,  Learn about your child's rights and entitlements for special education programs and services. Find out what you can do to make sure your child receives thebest education possible.
This is a great opportunity to take advantage of a workshop that normally costs $85 butthrough the generous funding from the Soroptimists International is offered at only $30 perperson ($25 for members of LDAFS).
workshop flyer

·      The BC Epilepsy Society is hosting a lecture on, "Epilepsy and Family Dynamics" on Monday, November 15th from 7-9 pm at the Chan Auditorium at BC Children's Hospital (4480 Oak Street). The speakers are Dr. Josef Zaide and Dr. Audrey Ho, psychologists who work with adults and children with epilepsy.
Epilepsy affects everyone in the family, not just the person with seizures. How well adjusted a person with epilepsy will be is strongly related to how the family adapts to the diagnosis. Recognizing feelings and learning to react appropriately is essential. Whether you are a parent of a child with epilepsy, a sibling of an individual with epilepsy, or an adult or senior living with epilepsy, this lecture will gave you valuable insight and coping strategies.
The lecture is $10 or free with a BC Epilepsy Society membership.
For more information on the 2010-2011 Speaking of Epilepsy Lecture Series, please contact the BC Epilepsy Society at 604-875-6704 or at

·      Monday, November 15, 2010
7:00 ˆ 9:00 pm
Surrey Conference Centre,
Building 400, Room 3, 9260ˆ140 Street, Surrey
Complimentary admission
Please pre-register at 604-591-5156 or
Cindy Johnston of Bridges Canada will provide an interactive review of
software tools available and currently being used in BC schools to help
struggling students improve their literacy, numeracy, and communication
skills. Included in the discussion will be Kurzweil 3000tm. Kurzweil 3000tm is researched based and enables struggling readers in grades 3 and above to
learn from the same content as their peers as it provides access to virtually
any text, curriculum, including print, electronic, and Web-based documents.
LDAFS is now offering student training on Kurzweil 3000
tm reading and
writing software which is available in the Surrey Schools. This training will
enable students to become proficient and then access it at their school.

o   The Annual General Meeting of the Learning Disabilities Association ˆ Fraser South precedes this seminar from 6:15 ˆ 6:45 pm. All members of the public are welcome to attend.

·      Helping people with intellectual disability have their own aspirational voice:  From  'non-verbal' to 'uniquely verbal'. Presented by Dr. Leighton Jay and Linda Perry Tuesday November 16, 2010 3:30 pm - 5:00 pm Room # 222,  Jack Bell Building, UBC Everyone is welcome to attend and there is no cost. Sponsored by  School of Social Work, University of British Columbia  Phone: 604-822-5872 Fax:  604-822-8656 Email:

·      Autism and ADHD: Managing Anxiety and Anger

Date: Nov 19, 2010
Time: 9:00 AM - 4:00 PM
Place: Four Seasons Hotel
Host: The Children's Foundation

By the end of the workshop you will be able to:Operationally describe anger and anxiety within a behavioural framework. Adjust "Community Based" preconceived generic descriptions to match individualized, situational, and motivational contexts. Value the significance of "Avoid Mad...Address Sad" as a salient intervention strategy. Expand the ABA approach for addressing anger and anxiety within a CBT model Understand why Cognitive Behavioural Therapy must lead the way to "emotive understanding" within a new alliance between behavioural and humanistic frameworks

Click here to see full brochure!

·      2010 International Conference on Developmental Disabilities and Aging/Alzheimer's Disease Trends ~ Discoveries ~ Innovative Interventions

November 19 and 20, 2010

Simon Fraser University's Harbour Centre515 West Hastings Street, Vancouver, British Columbia, Canada

Click here to get more information and the registration form.

The 3rd Annual Josephine Mills Research Awards Gala will be held on the Friday night (November 19th) of the Conference. Nominations are now being accepted. Click here for more details.
Please contact us for more information at (604) 444-3773

·        What if there was a Cure for Alzheimer's and no one Knew? Please Join Siegfried Gursche, founder and former publisher of Alive Magazine as he shares the incredible story of Doctor Mary Newport, her husband, and the healing power of MCT's (medium chain triglycerides). Anyone who knows of a person struggling with Alzheimer's or dementia or other neurological disease should not miss this thought-provoking session.  Hear about Alpha's NEW Professional Therapeutic line "The Science of Better Health". 

Saturday, November 20, 7:00 pm

Immanuel Church,109 E 40th Ave at Quebec St.,Vancouver, BC 


Seating is limited.
 Reserve your spot today.
Go to:

Siegfried Gursche, best known as the founder and publisher of alive. A true pioneer of the health food industry in Canada, witha career that has spanned more than 50 years and that continues today. Siegfried is a leading innovator in the science of healthy fats. He continues to share his knowledge, by writing books, teaching seminars and publishing his own in-house magazine, a most valuable educational tool. 

·      Transforming Parent-Child Interaction with Positive Behaviour Support Presented by: Joseph Lucyshyn, Ph.D Friday & Saturday, December 3 & 4, 2010 - Vancouver

·      Each year, the BC Epilepsy Society hosts Speaking of Epilepsy, a series of lectures on a wide variety of epilepsy related topics. In recent years topics have been as diverse as treatments, active living, epilepsy and learning, stress management, siblings of children with epilepsy, surgery, women's health, employment, and human rights issues. The 2010-2011 Speaking of Epilepsy lecture series includes:

November 15 Epilepsy and Family Dynamics Dr. Josef Zaide and Dr. Audrey Ho

January TBA What To Do If Your Medications Fail Dr. Linda Huh

February TBA Ask the Expert Panel Discussion
April TBA
Women With Epilepsy
Anti-Epileptic Medications
June TBA
Epilepsy Research in BC                    
All lectures are held at the Chan Auditorium in the Education and Research Building at the Children's and Women's Health Centre of BC located on 4480 Oak Street at 28th Avenue. Lectures run from 7-9 pm. Please contact us at 604-875-6704 or at to reserve your seat and confirm dates. Admission is free to current members of our Society and only $10 for each lecture if you are not a member. You can take out a membership at the start of any lecture and receive free admission.

·      January 13 - 15, 2011  Children's Autism Services Edmonton 4th Annual Conference Temple Grandin, Amy Weatherby, Lori Frost, Diane Twachtman-Cullen - click on the link above for more information and to register!

·      POPARD's Introduction to Autism Spectrum Disorders - Practical Applications
A Course for Education Professionals, Paraprofessionals & Parents.  Presented by
Marianne Mackenzie Garrison, B.Ed. 
Education and Behavior Consultant, Provincial Outreach Program for Autism and Related Disorders

5 Saturdays
January 15, 22, 29 & February 5, 12, 2011
9:00 am - 3:30 pm

SFU Harbour Centre Campus
515 West Hastings Street, Vancouver Click here for Registration Form >


·      See All ACT Upcoming Events   Check out November 27th!



·      Lest we Forget: Terry Kelly - A Pittance of Time (Official Version) On November 11, 1999 Terry Kelly was in a drug store in Dartmouth, Nova Scotia. At 10:55 AM an announcement came over the stores PA asking customers who would still be on the premises at 11:00 AM to give two minutes of silence in respect to the veterans who have sacrificed so much for us.
Terry was impressed with the stores leadership role in adopting the Legions two minutes of silence initiative. He felt that the stores contribution of educating the public to the importance of remembering was commendable.
When eleven o'clock arrived on that day, an announcement was again made asking for the two minutes of silence to commence. All customers, with the exception of a man who was accompanied by his young child, showed their respect.
Terry's anger towards the father for trying to engage the stores clerk in conversation and for setting a bad example for his child was channeled into a beautiful piece of work called, A Pittance of Time. Terry later recorded A Pittance of Time and included it on his full-length music CD, The Power of the Dream.
Thank You to the Royal Canadian Legion Todmorden Branch #10 and Woodbine Height Branch #2 for their participation in the Video.
Please visit  Click here to see the Video.


13. Other

·      Honouring the Convention: A Call to Action in B.C.The Disability Advisory Committee of the Community Legal Assistance Society (of which BCACL is a member) is hosting a community forum titled "Honouring the Convention: A Call to Action in B.C." on December 10, 2010, the International Day of Human Rights. CLICK HERE to register online

When: December 10, 2010; 8:30am - 4:30pm

Where: Vancouver Public Library, 350 West Georgia Street, in the Alice McKay Room

Cost: Registration is $50 and includes lunch. A limited number of subsidies are available. For information on registration and subsidies, please contact Sheila Hallam at or 604-777-9100 ext 503.

·      happy hooker.  If you're anything like us, when you head out and about with your stroller, kids, diaper bag, snacks, purse, pets and more, you tend to lose track of things. Not your kids of course...the other stuff. In fact we find it surprising that our stroller or diaper bag haven't been nicked at least once while we were frolicking on the swings with our offspring. Which is why we were reassured to discover the Buggyguard B-Hook. It's  a stylish stroller lock designed for hanging everything from your purse to your diaper bag, camera, shopping bags and just about anything else off of. 

·        CanAssist at the University of Victoria is very pleased to be conducting a feasibility study for CLBC regarding the accessibility of social media platforms for their clients.
One of the primary goals of the study is to determine how accessible social media platforms currently are to CLBC clients along with the reasons for this accessibility, or lack thereof. (e.g. key barriers to use by these individuals)
Input from CLBC stakeholders about their views regarding social media is crucial to the success of this project.  To that end we have prepared two surveys: one for individuals with developmental disabilities to be completed independently or with assistance, and one for family members and caregivers.
I should mention that we are interested in feedback from youth under the age of 19 in addition to adults with developmental disabilities given the rapid changes in access to technology and social media now and projected for the future.
The surveys use plain language and have been designed to be completed in about 10 minutes.  The survey will be posted until December 10th and our goal is to have as many individuals, families and caregivers complete the survey as possible during that timeframe.
The purpose of this note is to request that you circulate the attached invitation to complete the CanAssist social media survey through your various networks.  We would ask that you encourage your contacts to circulate the invitation further as well.  Click this link below to complete the survey:

If you have any questions please don't hesitate to contact me.
Robin Syme,Assistant Director-PartnershipsCanAssist ,University of Victoria Telephone: 250-721-7123 Cell: 250-818-5182  or email at

·      "Shakin' Not Cured" Fundraiser Will Raise Awareness and Funds for Epilepsy in BC The BC Epilepsy Society will be hosting a gala fundraising event on Wednesday, November 10, 2010 at Monk McQueen's restaurant in Vancouver. (601 Stamps Landing) With a James Bond theme, the event is from 7 - 10 pm. Doors open @ 6:30. An assortment of delicious hors d'oeuvres will be served. Entertainment is from Chad Oliver, former lead singer with Cirque du Soleil. Click here to get more information.

·      BC Personal Supports Network

What can the BCPSN do for me? Our first project is called EATI-the Equipment and Assistive Technology Initiative. If you're a person with a disability who has employment-related goals (or volunteer goals leading to employment), please read on to learn more and to see if you are eligible for the project. EATI provides a source of funding for assessment, trialing, purchasing and/or training with equipment and assistive devices that:

·       relate directly to your disability needs and

·       will help you reach your employment-related goals.

To be eligible for EATI, you must be:

·       A person with a disability who has an employment-related goal. Remember, volunteering can be an important step toward employment.

·       18 years of age or older

·       A BC Resident

·       Unemployed OR employed with low skills (for example, low English literacy, incomplete high school) and looking to upgrade

·       Ineligible for Employment Insurance (EI)

·       Have not received an EI benefit in the past 3 years

·       Have not received an EI maternity or parental benefit in the past 5 years

·       Able to demonstrate a need for assistive technology

·       Unable to access funding through other programs

Part-time students who are available for work may be eligible for EATI.  People over the age of 65 who are available for work are also eligible. Click here for more information

·       BC FAMILY NET Check out their new website!

Once again, BC families, adults and children are facing trying challenges in the face of fresh budget cuts in key sectors and yet another round in the endless restructuring of community living. Over the past year, our board has worked with families, government and other groups to bring forward concerns. We've also devoted considerable effort to laying the foundation for our organization to serve as a strong, independent and effective voice for BC families.
As we embark on a new phase and confront new challenges, we wish to invite more BC families to join us as members to strengthen our organization and help shape the BC FamilyNet of the future. This year, we have several Board vacancies, so we also encourage family members and self-advocates interested in a more active role to join our board and help shape the way forward. Our guest speaker for this year's AGM is Andrew Latta, the brother of an adult living in a CLBC-funded group home, who has been very successful in raising public awareness of the negative impacts of CLBC's recent budget cuts and service redesign.
We hope many of you will join us on November 17 (see details below) and/or pass this invitation along to others. If you can't attend, please visit our website (where you can download membership application forms) or drop us a note at: <>
Anita Dadson, President BC FamilyNet
NOVEMBER 17, 2010
Time:  1:30 am to 3:30pm  
Place:  181 Roundhouse Mews, Pacific Blvd between Davie and   
            Drake Streets in the room C Main Floor
            Parking off Drake St at driveway called Roundhouse Mews right by crosswalk to left.
Please RSVP by November 14th 2010: <>

·       FREE RDSP Planning Kit - get it at BC Coalition for People with Disabilities

·       Comprehensive Magazine regarding Sensory Issues Click here to check out SI FOCUS

·      Have a look at this link, to learn about a project that the posAbilities team has underway...the more votes they receive, the more likely it is that they will get the Pepsi grant.

·      Please take a moment to enjoy posAbilities Fall Newsletter  Imagine! - which includes a Coming Events insert.

·      NEW GORDON NEUFELD:  Introducing the new website and programs

·       NEW Check out SYMBOL WORLD's Current Newsletter here.

·      BC Epilepsy Current E-Newsletter available here!

·      NEW Parenting Special Needs Current Issue -

·      Disability is Natural - November E Newsletter - Click here! Inclusive Education (or What's So Special About Special Education?)

·      Exceptional Family Magazine - current issue!

·      101 Friends October newsletter!


·      Handle Institute - Current newsletter

·      The FORCE April 2010 newsletter is now online. Click here to download.


Reach posts a variety of material in this newsletter for the information of our readers only. Reach neither endorses nor condemns this material. We urge readers to consider this information with a critical eye and to form their own opinions about its validity or applicability to their situation.


Pam Collins for Reach Child and Youth Development Society, Formerly known as the Delta Association for Child Development


Tel: 604-946-6622, ext 359,


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