December 9 2010 REACH Parent Network Weekly Newsletter.
To submit for our newsletter or have a question for Pam to research please contact her at email@example.com or 604-946-6622 ext 359
You can sign up at the Reach Child and Youth Development Society website to receive this newsletter directly.
1. Help a parent! Need to know something? Want to contact other parents? This is YOUR space:
· I am the mother and grandmother of children with Asperger's . Recently, my daughter-in-law expressed frustration regarding finding resources for her son. As we got deeper into the discussion, my daughter and I felt the need for a virtual resource centre for parents with children with Asperger's. But before our webpage is up, we would like to survey parents to determine what issues and resources most concern them. To that end, we have developed a survey which we are distributing with the hope of collecting information which will help us build a truly powerful resource. Please be clear that it is not our intention to give advice, but rather to draw on professionals and resources that we can direct parents to. If you are interested in filling out the survey please contact Margaret Florczak. firstname.lastname@example.org
· Hello all, I have created a new discussion forum to discuss autism issues in BC. The site is entitled "The Autism Forum of BC" and is located at www.asdchat.com The FEAT chat forum is not shutting down and I am in no way proposing that it do so. The FEAT forum has over the years provided a valuable service to British Columbians affected by autism. It has linked parents together and promoted ABA in our province. Unfortunately the forum software is badly out of date and no one appears to have the appetite to update it. Many people have turned away because they were unable to register or unable to post. The new discussion forum uses the latest software and is user friendly. Some of the features include:
· One of the parents (speaks Mandarin & English) is looking for overnight respite caregiver for her 14 years old son. At this time they are looking for one weekend per month at your location. If you or someone you know is interested. Please send over. She lives around Kingsway & Edmond area in Burnaby. Please contact John Tsang at email@example.com
· Impressions, etc. Ben is a 24 year old impressionist and a person with a developmental disability - Fragile X Syndrome, or as we prefer a person with ‘a chronic case of acute individuality'. Ben has been performing his entire life for his family however, announced a year and a half ago that he would like to become an entertainer. He has performed his show this past year before various groups in the Vancouver lower mainland area. These groups include Mission Association for Community Living (various events); District of Mission's Celebration of Community Illuminaria; Youth Unlimited (various events); Burnaby Association for Community Inclusion; Station X; Union Gospel Mission; Mission Friendship Centre; Mission Foursquare Church's Women's Retreat; Focus Disability Network; Arcus Community Resource Centre; Abbotsford Community Services Epic Program and most recently at the MSA Society's Harvest Dance and BBQ in the Legacy Building and others. Ben does not have a fee for his show however, will accept honorariums when offered. Our family's goal for Ben is to honour his gift while shaking up the perceptions many have of people with developmental disabilities. By appealing to the inner child in all of us, we would like to offer hope to families who live with a child or adult with a developmental disability and just have a good time doing it. Ben continues to learn new voice impressions and has about eighty-five different characters. He closes his 15-20 minute show singing, ‘What a Wonderful World' in Louis Armstrong's voice. If you are interested in having Ben at your event, please contact him at firstname.lastname@example.org or myself, Debby Simcoe at email@example.com or 604.746.8478.
· Autism Canada Foundation's Executive Director, Laurie Mawlam, has received an invitation from the Subcommittee on Neurological Diseases to appear before the committee on Thursday, December 9, 2010 from 8:45 a.m. to 10:45 a.m. As part of its study on neurological diseases, the House of Commons Subcommittee on Neurological Diseases is interested in learning about Autism and Autism Spectrum Disorder (ASD).
- It is interested in hearing from experts on the prevalence, diagnosis, treatment options, and prognosis for these disorders.
- In addition the subcommittee would like to hear about the health and economic burdens associated with Autism and ASD not only for the individuals affected but caregivers as well.
- Finally, the subcommittee is also interested in learning about research developments in areas including the identification of possible causes, prevention and treatment.
- Witnesses are also invited to suggest possible recommendations related to the federal role in these areas.
What would you have to say? Send comments to: firstname.lastname@example.org
· FDA to Hold Hearing on Food Dyes & Children's Behavior. The news that the Food and Drug Administration, in response to CSPI's 2008 petition, will convene an advisory committee meeting to discuss the link between food dyes and children's behavior is welcome and overdue. Yellow 5, Red 40, and other commonly used food dyes have long been shown in numerous clinical studies to impair children's behavior. But for years, FDA-which actually commissioned one of the first controlled studies-dismissed the mounting evidence against the dyes. Click here to read more.
· RE CLBC GROUP HOME CLOSURES DDA's Dec 2010 article on CLBC cost-cutting pressures on this large Vancouver/Richmond agency: Report on deep cost cuts in Powell River, which the local agency weakly attempts to spin as a positive move that will only improve services to adults Another report on Nanaimo cuts: Report from New West, where local MLA Dawn Black speaks up about the local concerns in her community: Victoria report by the Times Colonists' Lindsay Kines, on our growing community partnership to fight back against the cuts:
· From Delta Police Department to the local business community: I am investigating recent reports of a person posing as fire extinguisher maintenance person and another person posing as a window washer. Both people have committed several frauds throughout Delta recently and extensively throughout lower mainland over past couple of years. I require help from local business community!!!! Anyone who has had either of these people come into their business recently please call the Delta Police and file a report under #2010-24317 ASAP even if you did not have any money taken. I also require security video for photos. if you have any please let me know. I also require any invoices the people left paid or not... In addition: Anyone who has been inspected by METRO FIRE SERVICE usually with a red tag that would be left on the fire extinguisher, that inspection is void!!! I'm not sure what the requirements are for Delta at this time for inspection? It's recommended you contact Delta fire to get requirements to ensure no one's insurance is void! If everyone who has been hit could phone DPD and leave contact info for file #2010-24317 I will follow up with everyone on Friday. Thank you for all your help in making a Delta a safer, fraud free community. Best regards, Cst. Steve Wilson Delta Police Department C-Platoon, South 4455 Clarence Taylor Crescent Delta, B.C. V4K 3E1 Tel: 604-946-4411 Fax: 604-946-3729 Cell: 604-729-3341
3. Reach Child and Youth Development Society
Advocacy & School Transitions. This workshop will offer an overview of what is involved in the process of seeking the education that children with special needs are entitled to. Parents will learn about the skills they need to facilitate a successful school experience. This workshop will also cover practical skills for ensuring a smooth transition for children going into kindergarten, grade 1, or into high school.
Appropriate for parents of children aged 4 - 13
Date: Thursday, January 20, 2011
Time: 6:30 - 8:30 pm
Location: Reach Child and Youth Development Society
Register by email with email@example.com
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· How do you discipline a child with Asperger's Syndrome? By Dr. Tony Attwood. I tragically see a number of teachers saying "it's a matter of discipline!" Well, okay. Certainly having AS is not a license to do whatever you want to do, and there must be natural consequences. But my view is, with the child with AS, you must spend more time explaining what they did that was wrong, why it was wrong, what you are supposed to do, and how to know when you are supposed to do it Click here to read more.
· Welcome to USAAA Weekly News: Click here to read more.
· A Message from Autism Biomedical Dietary Expert Karyn Seroussi. Lots of people have been asking me what I'm up to lately. Here are some details:
Show me the science!
Did you ever have doctors tell you there is no scientific basis for the biomedical treatment of autism? Well guess what: Since 1990 there have been 105 studies linking autism and diet. There have been over 70 studies linking autism to immune and metabolic abnormalities. There have been over 60 studies describing a positive outcome from biomedical treatments. Why don't doctors know this? Because nobody has told them! Click here to read more.
Evidence-based practice (EBP) briefs have been developed for all 24 identified evidence-based practices. Select a practice below to access the overview of the practice and downloadable PDF files for the EBP brief and the individual components. An evidence-based practice brief consists of the following core components: Click here to read more.
· Biomedical Treatments for Autism Spectrum Disorders:Scientific References and Abstracts Website - Click here to check it out.
· The Richmond Autism Parent Support Group (RAPS) has a new facilitator, Cris Puno and a new email address - please put this in your computer! Richmond.firstname.lastname@example.org
· Frames of Mind - A monthly Mental Health Film Series presents
Wednesday, December 15, 2010 - 7:30pm Australia 2008. Director: Elissa Down Cast: Rhys Wakefield, Luke Ford, Toni Collette, Erik Thomson, Gemma Ward Writer-director Elissa Down, who has two autistic brothers, draws on personal experience to tell the affecting tale of Thomas (Rhys Wakefield), a teen increasingly embarrassed by the antics of his severely autistic older brother Charlie (Ford). Click here for more information!
· Richmond ASBC Parents Group Meeting
o January 31, 2011 Anna Matchneva, M.Ed., BCBA, and Alexia Stack, M.Ed., BCBA Building Cooperation and Motivation to Learn March 14, 2011 Bohdanna Popowycz Kvam, B.Sc., M. Ed. Topic to be announced May 30, 2011 Jessica Fung, OTR/L Incorporating Occupational Therapy into a Behavioural Therapy Program
· Selection of Abstracts Regarding Medical Findings and Biomedical Treatments for Attention Deficit Disorders - NEW WEBSITE: Click here to check it out.
· Click HERE for a free issue of ADDITUDE Magazine!
6. Downs Syndrome
· The Vancouver Sun did a 4 part series regarding FASD:
o Fetal Alcohol Syndrome series: Mysterious clues led to FAS diagnosis. Babies with facial deformities and intellectual deficits nagged northern B.C. doctor Click here to read more.
o Fetal Alcohol Syndrome series: Living with FASD. When you meet Ken Kissinger he appears to be an ordinary young man busy doing what most 30-year-olds are doing at this stage in their lives.He holds down a full-time job, is in a relationship and is saving to buy his first home. But there is one huge difference between Kissinger and his peers - his mother drank when she was pregnant leaving him with Fetal Alcohol Spectrum Disorder. Click here to read more.
o Fetal Alcohol Syndrome: Working through the guilt. When her son was born, 34 years ago, Janet Christie, like most new mothers, counted his 10 toes and 10 fingers, then sighed in relief. Her baby was "normal." But all was definitely not well with this seemingly perfect newborn. It wasn't until her child was in Grade 1, struggling academically and acting out in school, that Christie admitted to herself she might have caused her son's problems. Christie was an alcoholic, who binge-drank throughout her only pregnancy. Click here to read more.
This article is the last in the four part series by Kim Pemberton of the Vancouver Sun. What happens when a person with FASD isn't supported in community? This is one man's story told from a medium-security prison. Click here to read more.
· Punishment is not an effective deterrent. Many who struggle with FAS are unable to understand the consequences of their actions. Lyle Tenale doesn't remember much about his alcoholic mother. He heard she put wine in his baby bottle to keep him quiet, and left him in charge of his sister and three younger brothers while she drank in the bars. He was a preschooler at the time. In 1968, when Tenale was only five years old, his mother died of alcoholism-related causes. She never knew her drinking had a profound and lasting impact on her oldest child's life. Click here to read more.
o Province launches program to help educate teachers about FASD. Students with fetal alcohol spectrum disorder who act out in classrooms and struggle academically are often mistakenly identified as having behavioural problems. Many quit high school, frustrated by their inability to fit in. The Ministry of Education is trying to change attitudes and help students with FASD succeed in school through the Provincial Outreach Program for FASD, which has operated out of the Prince George school district since 1996. Click here to read more.
Wednesday, April 14, 2010 (All day) - Saturday, April 17, 2010 (All day)
Vancouver Facing the Future Together: Where Do We Go From Here?
This conference will bring together a diverse group of professionals and families to share research, experience and practice in order to sustain and enhance the lives of adolescents and adults with FASD, their families, service providers, and communities. Full conference brochure and registration information. When: April 14th - 17th, 2010 Where: The Hyatt Regency Vancouver, British Columbia, Canada
· Fetal Alcohol Forum - Issue 4 - November 2010
· FASD Ontario Fall newsletter - Click here.
· Growing Together: A Retreat for Parents of People with Fetal Alcohol Spectrum Disorder. You are invited to our third annual parent retreat for adoptive parents of children, youth, or adults who are suspected of having or have been diagnosed with a Fetal Alcohol Spectrum Disorder (FASD). As a parent-led organization, we know the importance for parents to have a chance to come together with those who understand and care.
When: January 29, 2011 8:45am - 5:00pm Location: Executive Airport Plaza Hotel, Richmond, BC Cost: Early (by Dec. 15): $35 Individual $60 Couple Regular: $40 Individual $75 Couple
Optional Networking Dinner: $15For more information, contact Tanya Loretto 604-266-1220 or email@example.com. To download registration information, click here.
8. Ministry Information
Ministry of Children and Family Development: Responsible for providing a range of services and supports for children and youth with special needs and their families.
Community Living British Columbia: Responsible for delivering services and supports for adults with developmental disabilities
o CLBC Newsletter October 2010 THE CITIZEN
Ministry of Housing & Social Development: Responsible for education and support payments, work programs, bus passes and health and dental benefits for persons with disabilities.
· Nominations Open for 2011 Inclusive Education Awards
December 6, 2010
Nominations are now being accepted for the 2011 National Inclusive Education Awards. The deadline for nominations is January 15, 2010....
· Force Society For Children's Mental Health Click on the link to find out about New monthly parent information and network sessions. Sessions will be offered through in person, teleconferencing and media site. They offer:
· Complex child magazine NEW Click here for the December 2010 Edition GI Treatments and Surgeries
12. Workshops & Training (in order of date)
· Each year, the BC Epilepsy Society hosts Speaking of Epilepsy, a series of lectures on a wide variety of epilepsy related topics. In recent years topics have been as diverse as treatments, active living, epilepsy and learning, stress management, siblings of children with epilepsy, surgery, women's health, employment, and human rights issues. The 2010-2011 Speaking of Epilepsy lecture series includes:
January TBA What To Do If Your Medications Fail Dr. Linda Huh
February TBA Ask the Expert Panel Discussion April TBA Women With Epilepsy May TBAAnti-Epileptic Medications June TBA Epilepsy Research in BC All lectures are held at the Chan Auditorium in the Education and Research Building at the Children's and Women's Health Centre of BC located on 4480 Oak Street at 28th Avenue. Lectures run from 7-9 pm. Please contact us at 604-875-6704 or at firstname.lastname@example.org to reserve your seat and confirm dates. Admission is free to current members of our Society and only $10 for each lecture if you are not a member. You can take out a membership at the start of any lecture and receive free admission.
· January 13 - 15, 2011 Children's Autism Services Edmonton 4th Annual Conference Temple Grandin, Amy Weatherby, Lori Frost, Diane Twachtman-Cullen - click on the link above for more information and to register!
· Building Bridges Forum: Planning and Preparing for the Future Date: Feb. 18 - 19, 2011 CanAssist, together with its community partners, is hosting a two day forum that will bring together families, educators, and health/social service providers to undertake joint planning that supports children with special needs. NOTE: There will be a particular focus on the middle years (ages 10-14) but there will be a range of workshops/topics that will be relevant to supporting children of any age group. We encourage any parent with a special needs child of any age and their caregivers, service providers and educators to participate in our Forum. Location: Spectrum Community School 957 Burnside Road West, Victoria, BC Registration: Registration is NOW open!
· THE BIRDS AND THE BEES REVISITED: Supporting the Sexual Development of Low Incidence Adolescents
This all day session will focus on how school personnel can facilitate, support and intervene with low
incidence students around the following:
o sexual development
o sexual issues
o developing appropriate language to talk about sexual issues
o fostering appropriate boy/girl friend relationships
o good and bad touching
o sexual vulnerability risk factors for low incidence students
o Audience: Grade 6-12 Special Ed Resource & Classroom Teachers, SSA's, Support Staff
o working with Low Incidence Students in program & mainstream settings
o Presenter: Margaret Newbury Jones, Sexuality Educator-SHADE Consulting Ltd.
o Date: Friday, 2011 February 18
o Margaret has been teaching K-12 students with special needs since 1988. She has worked with people with developmental disabilities, Autism Spectrum Disorders, Attention Deficit Disorder, Learning Disabilities, brain injury, physical disabilities, mental illness and hearing impairments. Click here for registration information.
Facing the Future Together: Where Do We Go From Here?
This conference will bring together a diverse group of professionals and families to share research, experience and practice in order to sustain and enhance the lives of adolescents and adults with FASD, their families, service providers, and communities. Full conference brochure and registration information.
When: April 14th - 17th, 2010
Where: The Hyatt Regency Vancouver, British Columbia, Canada
· POPARD's Introduction to Autism Spectrum Disorders - Practical Applications
A Course for Education Professionals, Paraprofessionals & Parents. Presented by
Marianne Mackenzie Garrison, B.Ed.
Education and Behavior Consultant, Provincial Outreach Program for Autism and Related Disorders
January 15, 22, 29 & February 5, 12, 2011
9:00 am - 3:30 pm
SFU Harbour Centre Campus
515 West Hastings Street, Vancouver Click here for Registration Form >
· See All ACT Upcoming Events
· Click here for the YOYOMAMA Holiday Gift Guide!
· ‘Tis the season to deck the halls, which means trees go up, holiday decorations come out, parties get thrown, and many families travel far and wide. In all the (hectic) merriment it's important to remember a safe holiday makes a happy holiday. Here are a few reminders to keep the kids safe and healthy this holiday season: Click here for some seasonal safety tips.
· Check out this website if you are wondering how to make your holiday meals allergy free! http://www.cookitallergyfree.com/
· Family Support Institute has embarked on an exciting project partnering with the Simon Fraser Soc. for Community Living and CLBC to deliver workshops on "Families Promoting Employment First". There are six communities involved and once the details are arranged we will be sending out flyers and asking you to forward this information to promote the workshop. To make the experience more meaningful for families, we are hoping to add Creative Employment Stories to our presentation and wonder if you have or know of someone who has a great employment story about their child or family member. FSI would like to collect these stories to share and inspire others who are on this path of supporting employment. Please send stories or contact information to Angela Clancy, FSI Executive Director by email or phone: email@example.com or 604 540-8374 Ext #524.
· Please see these important attachments about the RDSP. In particular, check out the third attachment, which explains the difference between a Disability Savings BOND and a Disability Savings GRANT (in which the government matches your contribution by 300%-for every $1 you put in, the government puts in $3). The BC COMPAS RDSP attachment also answers some important questions i.e. when the funds may be withdrawn, maximum lifetime amount, etc.
o Click here to see the Information Brochure
o Click here for the Disability Tax Credit Certificate
o Click here to see the BC Compas RDSP Powerpoint Presentation
· FREE RDSP Planning Kit - get it at BC Coalition for People with Disabilities
· Comprehensive Magazine regarding Sensory Issues NEW Click here to read new issue!
· Check out SYMBOL WORLD's Current Newsletter here.
· BC Epilepsy Current Newsletter - click here!
· Parenting Special Needs Current Issue -
· Disability is Natural December e-newsletter is HERE! Making Memories: To understand a man, you must know his memories. Anthony Quayle
· Exceptional Family Magazine - current issue!
· Welcome to the 101 Friends December Newsletter
· Handle Institute - Current newsletter
· NEW Barry McDonald's MENTORING BOYS December Newsletter - Click here.
· Click here for the new SI FOCUS newsletter!
· Click here for the current issue of CACL's INFO @
· The FORCE April 2010 newsletter is now online. Click here to download.
Reach posts a variety of material in this newsletter for the information of our readers only. Reach neither endorses nor condemns this material. We urge readers to consider this information with a critical eye and to form their own opinions about its validity or applicability to their situation.
Pam Collins for Reach Child and Youth Development Society, Formerly known as the Delta Association for Child Development
Tel: 604-946-6622, ext 359,
If you have received this communication in error, please contact Reach by phone at 604-946-6622, and press 0.