February 21, 2011 REACH Parent Network Weekly Newsletter.
To submit for our newsletter or have a question for Pam to research please contact her at email@example.com or 604-946-6622 ext 359
You can sign up at the Reach Child and Youth Development Society website to receive this newsletter directly.
1. Help a parent! Need to know something? Want to contact other parents? This is YOUR space:
· Hi - I have a question for parents/teaches and other professionals out there from a Vancouver parent who is weighing options for her son with ASD entering high school next year. The student is not doing core academics at grade level, has a talent/love for music (strings) and a passive, gentle personality (easily overlooked). Mom is looking for ideas and advice from others who may have put together customized secondary programs that offer an alternative to full integration or the fully-segregated Life Skills program, which is all that VSB is currently offering her. Ideally, the student's program would include integration for some classes, such as music, core academics that focus on achieving basic literacy & numeracy skills by Grade 12 and meaningful socialization oportunities. The student currently has an ABA-trained aide, but getting even minimal aide support next year is expected to be difficult. Vancouver experiences (please name the high school) are more relevant, but we'd also love to hear of creative solutions that are working in other districts (and or advice on what to avoid!). The mom is also interested in private school and/or home school solutions (including advice on any creative funding solutions) Please share your ideas with me at firstname.lastname@example.org and I will pass them on. Please state whether you want me to share your information anonymously or whether I can pass your contact info on to the mom so that she can follow up directly with you. Thankyou, Error! Contact not defined..
· Dear Parents, We are looking for help from parents of children with ASD who have had a death in the family and have helped their child with understanding the death and with grieving. We are third year nursing students from Grant MacEwan University working with the Autism Society to developing a tip sheet for parents on this sensitive issue. We would appreciate hearing your stories, successes and challenges as you worked to help your child understand and deal with the death in the family. We understand that this is a sensitive issue and appreciate any ideas or suggestions you may have. The following are a few questions to guide your feedback:
Have you experienced a death that affected your family? How did your child react?
What strategies did you use to assist your child with understanding? What were the challenges? What was helpful to support your child's understanding?
How did your child express grieving? How did you support your child emotionally through this time? What were the challenges?
Parents often develop creative ways to help their children with ASD through some of life's most difficult challenges. We appreciate your willingness to share what worked for you and your child, so that other parents may benefit from your experience.
Please send your comments to Desirae Staden at the following address: email@example.com
· Click here for a recent update on the Laura Szendrei case.
· FOR IMMEDIATE RELEASE "Status Quo" Budget a Scary Prospect for People with Developmental Disabilities and their Families. Contact: Danielle Kelliher, Director of Communications, BC Association for Community Living, (604) 777-9100 ext. 527; firstname.lastname@example.org. New Westminster, B.C, February 16, 2011 - B.C.'s Minister of Finance announced the provincial budget yesterday, revealing yet another flat-lined budget for Community Living BC (CLBC) the crown agency that provides vital support to adults with developmental disabilities in B.C. and their families. Click here to read more.
· In honour of International Anti-Bullying Day, two schools came together to create a message of Acceptance and challenge others to use social media as a positive tool. Spread the word! Anti-Bullying Flashmob January 2011 VANCOUVER BC Click here to watch the video!
· Click here to find out about PINK SHIRT DAY February 23, 2011 - Anti-Bullying Day
3. Reach Child and Youth Development Society
· Sexuality: Preparing a plan for Sex Education and Abuse Prevention for Your Child with Special Needs
Are you unsure how to broach the subject of Sex Education and Abuse Prevention? What if your child has special needs---How will you explain this subject? If you are baffled or overwhelmed, or if you just want to be prepared, then this is the workshop for you! You will learn: How to come up with a comprehensive plan of what, who, how and when to teach your child; what they need to know and when they need to know it to keep them informed and safe. Join us and create a plan for healthy sexual development for your child.
Facilitated by: Camille Netherton
Date: Wednesday, March 16, 2011
Time: 9:30 am - 2 pm
Please bring your own nut free lunch
Location: Reach Child and Youth Development
Society #3 - 3800 72nd Street in Ladner
(Near the Boundary Bay Airport)
Register by email email@example.com
Or phone: 604-946-6622, ext 343 Or fax: 604-946-6223 $20 workshop fee can be paid at the door
Reach on Facebook
Reach on Twitter
· TED TALKS! Autism activist Temple Grandin talks about how her mind works -- sharing her ability to "think in pictures," which helps her solve problems that neurotypical brains might miss. She makes the case that the world needs people on the autism spectrum: visual thinkers, pattern thinkers, verbal thinkers, and all kinds of smart geeky kids. Click here to see the video and hear Temple!
· Video: Focus on autism and relationships. Six individuals with autism gather to share perspectives on relationships, and what they each value in a relationship. This television show was created by clients, employees, and friends of FOCUS Alternative Learning Center, a non-profit providing services to individuals on the Autism Spectrum located in Canton, CT.
Click here to see the video!
· Rethink Autism has created a tool to answer these challenges: a state-of-the-art, web-based curriculum to help you assess your child's strengths and challenges, creating a recommended customized multimedia curriculum for you to follow. They also provide strategies to help you adapt each lesson to your child's individual abilities, and tools to modify and individualize your child's personal program goals. As you move through the curriculum, the data collection program tracks your child's progress and adjust program goals and lesson plans in light of his performance. Click here to read more.
Dental Care Study for Children with Autism Spectrum Disorders @ BC Children's Hospital Help us investigate the effectiveness of the use of visual cues (visual pedagogy) to increase the cooperation of children with autism during dental visits Who can participate in the study? - Boys between the ages of 4-6 years - Diagnosed with Autism Spectrum Disorder using the DSM IV criteria
· - No complete previous dental exam at other dental office What would be required of you and your child? - 4 dental visits of approximately 1.5 hours each. -Contact the research team to let them know that you would be interested in enrolling your child into the study. During this initial contact the research team will take the time to explain further details to you and will ask you a few questions to assess whether your child meets the requirements to enter the study. - You will then be invited to a meeting with the research team where all of the information you need to make your final decision will be given to you. What will your child get out of the study? - Free Dental Check-up, cleaning and fluoride treatment -Transportation costs will be covered for each visit **To find out more, please contact Amin Salmasi at 778 882 5131, Aimee Castro at 604 328 2626; Phoebe Tsang (Principal Investigator) or alternately, e-mail Kayla: firstname.lastname@example.org
· An Outreach Clinic for ASD, ADHD and Mental Disorders will be held in Burnaby on Saturday April 30, 2011, hosted by the Great Plains Laboratory and Dr.Bratt. For more information and registration contact www.greatplainslaboratory.com
· POPARD is hosting a transition resource fair for families of secondary students with Autism Spectrum Disorder and the professionals who work with them in Delta, Surrey, Langley and Richmond. The transition resource fair will be held on Tuesday April 12th from 6-9 PM at the Delta Manor Education Centre 4750 57 Street Ladner. If you have any questions or would like to participate please contact me at the telephone or email address listed below. Joanne Marshall Education and Behaviour Consultant Provincial Outreach Program for Autism and Related Disorders 4746-57th Street Delta , B.C. V4K 3C9 Tel: 604-946-3610 Fax: 604-946-2956 jkmarshall@delta sd.bc.ca www.autismoutreach.ca <http://www.autismoutreach.ca>
· It's almost the last Thursday of the month again and I just wanted to send a reminder for this month's RAPS meeting. The details are below - February 24 (Thursday) #210 - 3671 Chatham Street 7:30 to 9:00 pm The room is above the Chatham Speech and Language clinic. Just go up the stairs and enter the door on your left (210). As with last month's meeting, it will be an informal meeting to share information and resources, talk about advocating for our children, etc. We hope to see you all there :) Cris Puno,RAPS
· Autism Naturally - ANCA - February Newsletter - Click here!
· Richmond ASBC Parents Group Meeting March 14, 2011 Bohdanna Popowycz Kvam, B.Sc., M. Ed. Topic to be announced May 30, 2011 Jessica Fung, OTR/L Incorporating Occupational Therapy into a Behavioural Therapy Program
Contact Autism Society of BC for more details
· Please be our guest and join our free live webcast "It's All in Your Head!" on Saturday, March 5th, 2011 at 10 am PT, from the comfort of your home. Dr. Swingle will discuss ADD and Learning Disorders. THE TOPIC WILL BE ADD & LEARNING DISORDERS. Neurotherapy has been shown to be a very efficient way to treat all of the forms of attention deficits. Dr. Swingle will discuss the various forms of attention deficits and the methods for treating these conditions. Some of the more common learning disorders will also be discussed.
· An Outreach Clinic for ASD, ADHD and Mental Disorders will be held in Burnaby on Saturday April 30, 2011, hosted by the Great Plains Laboratory and Dr.Bratt. For more information and registration contact www.greatplainslaboratory.com
2. DOWN SYNDROME
· The Lower Mainland Down
Syndrome Society Presents:
A Spring Social / Fundraiser Celebrating World Down Syndrome Awareness Day
When: Friday, March 18th
6:00 pm Doors open - 7:00 pm Buffet Dinner
17750 60th Ave., Surrey, BC
*50 available Advance Ticket Purchase: $35-Adults
Includes buffet dinner: carved roast, lasagna, salads, chicken, ribs,
veggies, mashed potatoes and dessert buffet. PLUS enjoy:
50//50 Draw / Toonie Toss / Silent auction items / Fundraiser name in our official race day program
1 Fraser Downs prize for our silent auction
Starting Gate Ride** Backstretch Tour** **Subject to Availability
Ticket payment must be received by February 28; no refunds after March 2 *Ticket Purchase after
February 28: $40 Adults / $25 Seniors/Self-Advocates. Contact the LMDSS office (#201-13281 72nd
Ave., Surrey, BC V3W 2N5; call: 604-591-2722, or email: email@example.com
· Visual aid offers insight into FASD. Michael Harris has created a simple concept to increase understanding about the complex behaviour of people with fetal alcohol spectrum disorder (FASD).The director of the Counselling and Support Clinic at the Indian Health Board of Minneapolis developed the FASD Wheel -a visual representation of the strengths and weaknesses of a person with FASD. Click here to read more.
· Best Start Resource Centre is pleased to announce new brochures for
women who are pregnant, Mocktails for Mom and Cocktails sans alcool pour maman. These colourful brochures provide brief background information about alcohol use and pregnancy, and feature a variety of delicious recipes for non-alcoholic beverages or "mocktails" as they are popularly known. There are many ways to use the brochures - give them out in prenatal classes, at an FASD awareness display or event, at a competition, at a prenatal health fair or baby fair, or make them
available at a drop in centre for families. To view or order these resources,
· For FaceBook Users there is a new friend called FAS ANGELS - Click here to check it out
· Click here for the ASANTE January 2011 Newsletter
Event Date: 03/02/2011 - 03/05/2011
When: March 2-5, 2011
Location: Westin Bayshore, Vancouver, BC
UBC Interprofessional Continuing Education and the Canada Northwest FASD Partnership invites you to the 4th International Conference on Fetal Alcohol Spectrum Disorder, The Power of Knowledge: Integrating Research, Policy, and Promising Practice Around the World.
Our understanding of FASD is entering a period of rapid expansion and change, dramatically increasing our comprehension of the breadth and depth of the global impact of this lifelong disability. This 4th International conference will provide an advanced forum for emerging and cutting edge research, policy and practice that will assist governments, service systems, service providers, parents and caregivers, as we strive to address the complex issues of FASD. This new knowledge will be an impetus for critical action in supporting women, individuals, families, and communities around the world. Click to find out more.
· Click here for the February Edition of COMPLEX CHILD Sleep (or Lack Thereof)
· Force Society For Children's Mental Health Click on the link to find out about New monthly parent information and network sessions. Sessions will be offered through in person, teleconferencing and media site.
· The Delta School District is presently going through a Visioning Process - you can find out all about it at The district website - click here! Something that the district is looking into is called Universal Design for Learning - more to come!
· The Richmond School District is conducting an inquiry regarding current practice of allocating Educational Assistants with a view to establishing future directions for allocation of resources and the use and function of educational assistants in the system. Specifically, the purposes are to: 1. reflect on fairness and transparency of the current process 2. obtain feedback on what stakeholders think of the process - is it fair and transparent? 3. focus on joint ownership of all stakeholders working together in an interdependent way - seeing the district as a whole, not just 48 sites 4. assist with understanding the role of the EA in supporting students 5. seek direction from staff and stakeholders regarding needs and future directions. Don Chapman, an independent educational consultant, will be conducting this inquiry. Don has worked extensively across the province in a variety of educational initiatives. He brings not only his knowledge of school systems and student support systems across the province but also, and very importantly, his unbiased ability to listen to perspectives without judgement. The process will begin this month (January, 2011) and is expected to be concluded in the early spring. Attached is a description of the process that Mr. Chapman will be using. Part of the process includes conducting Focus Groups. Mr. Chapman will be conducting a Parent Focus Group on Wednesday, March 2nd at Ferris Elementary School, 7520 Sunnymede Crescent, from 7:00-8:00 PM. Please contact Lori Campion at firstname.lastname@example.org if you wish to participate.
· Gary James is on a mission. As a father of two special needs kids, he's reviewing every app he can find that will help them. And he's discovering treasures! Gary's efforts are benefiting his kids... but he knows they can help many more. As such, Gary has dedicated a website to document his findings. Anyone can read his candid, in-depth reviews and comments and find learning treasures for their kids. Note that Gary is freely sharing his time, learnings and resources. Like so many people in this extraordinarily compassionate and generous autism community, Gary is helping us all learn to "thrive with autism." Thanks, Gary!! Click here to see his website!
· Technology for Your Toolbox: Boardmaker & iPad. This presentation will provide an overview of technology and software applications that can facilitate communication and learning for children with autism and other developmental disabilities. Participants will see a number of apps in use for the Apple iPad and will leave with a list of apps that they can use with their children or students. This session will also introduce participants to the Boardmaker Software Family and focus on learning to use this application to create activities to teach vocabulary, sentence construction, math and other concepts.Presented by
Brenda Fossett, Ph.D., BCBA-D
University of British Columbia
Friday, April 1, 2011
9:00 a.m. - 3:00 p.m. (Registration starts at 8 a.m.)
Harbour Centre Campus, Simon Fraser University
515 West Hastings Street, Vancouver, British Columbia
Early Bird Deadline - February 22, 2011. To register call the ACT office to register 604-205-5467 or toll-free 1-866-939-5188
3. MINISTRY INFORMATION
Ministry of Children and Family Development: Responsible for providing a range of services and supports for children and youth with special needs and their families.
Community Living British Columbia: Responsible for delivering services and supports for adults with developmental disabilities
Ministry of Housing & Social Development: Responsible for education and support payments, work programs, bus passes and health and dental benefits for persons with disabilities.
4. WORKSHOPS & TRAINING (in order of date)
· Each year, the BC Epilepsy Society hosts Speaking of Epilepsy, a series of lectures on a wide variety of epilepsy related topics. In recent years topics have been as diverse as treatments, active living, epilepsy and learning, stress management, siblings of children with epilepsy, surgery, women's health, employment, and human rights issues. The 2010-2011 Speaking of Epilepsy lecture series includes: April TBA Women With Epilepsy May TBAAnti-Epileptic Medications June TBA Epilepsy Research in BC All lectures are held at the Chan Auditorium in the Education and Research Building at the Children's and Women's Health Centre of BC located on 4480 Oak Street at 28th Avenue. Lectures run from 7-9 pm. Please contact us at 604-875-6704 or at email@example.com to reserve your seat and confirm dates. Admission is free to current members of our Society and only $10 for each lecture if you are not a member. You can take out a membership at the start of any lecture and receive free admission.
· Building Personal Support Networks Workshop - Vancouver Centre for Peace. A one-day workshop for staff, families and self advocates. In 2007, CLBC funded four demonstration projects that examined ways of deepening and expanding personal support networks in the lives of people with developmental disabilities. In follow up to this work, CLBC partnered with Spectrum Society to develop a one-day workshop that is being hosted in communities throughout the province. Local agencies bring together people in their community who are interested in exploring this issue.This workshop is intended to create a dialogue on building personal support networks, and to expand on some of the lessons learned through the demonstration projects.
Learn about the concept of a personal support network;
Hear success stories from other areas of the province and contribute your own ideas and stories;
Network with others in your community and learn about networking opportunities;
Generate solution-oriented steps and strategies for expanding relationships
Host agency: Spectrum Society for Community Living
Date: February 25, 2011
Time: *Coffee will be available at 9:00* 9:30 - 4:00
Location: Centre for Peace (Canadian Memorial Church) - 1825 West 16th Ave.
Cost: Costs for this workshop are provided by a grant from CLBC so there is no registration fee. However, seating is limited so you must pre-register.
Contact Judy Wong, Office Manager, Spectrum Society (604) 323-1433 or firstname.lastname@example.org
*Lunch will be provided*
· WHEN: 10:00 am - 2: 30 pm, Saturday, 26th February, 2011 WHERE: Delta Community Living Society, #1-3800-72nd Street, Delta, BC COST: $10.00 (includes lunch & refreshment) CONTACT: Si Stainton mailto:email@example.com t: 604-952-6490.
· Delta Community Living Society, & the Delta Family Alliance Network Invite you to attend: Tax tips for families with a relative with a developmental disability (morning) Inclusive post secondary education for young adults with developmental disabilities (afternoon)
Date: 10:00am - 3:00pm, Saturday, 5th March, 2011 Presenters: Jack Styan RDSP Resource Centre (morning); Jessica Humphrey, STEPS Forward (afternoon). Venue: Delta Community Living Society, #1-3800-72nd Street, Delta, BC V4K 3N2. Target Audience: Parents and family members of adults and youth with developmental disabilities. (15 -20 people) Details of Workshops: Tax tips: Framework for financial security (income programs, saving, taxes, employment/education, wealth transfer), Overview of BC Disability Benefits - OAS, GIS, Intro to taxes - your money that you might not be claiming (credits, deductions, benefits, refunds), Putting it all together. Inclusive post secondary education: What going to university/college can offer your son or daughter, what the application and eligibility criteria is. Note: Levels of cognitive, physical, or academic ability are NOT criteria for eligibility, nor are diagnostic labels or prior education, what the role of the STEPS Forward Inclusion facilitators is and stories of current students and graduates. Closing date for registration: Friday, 25th February 2011. Workshop fee: $10.00 (inc. lunch & refreshment). To register for this workshop, please contact Joanne Fee, Delta Community Living Society, Human Resources & Administrative Assistant firstname.lastname@example.org , 604-946-9508 ext. 222. To find out more information about this workshop, please contact Si Stainton, Delta Community Living Society, Family Services Liaison, email@example.com , 604-952-6490.
· COMING TO YOU ONLINE. The Basic Course on
THE GREENSPAN FLOORTIME APPROACH TM for professionals and parents. Through video lectures recorded by Stanley I.Greenspan, M.D. Register Now Available to registered participants for ten weeks from March 5 through May 15, 2011 Click here to find out more information or to register
· The 2011 Special Education Conference will be held at the Shoreline Conference Center (greater Seattle area) on March 9-11, 2011. We have "gone green" and will not be sending out conference programs. However, you may download a brochure at our website at http://www.rehabseminars.org
· THINKING IN THE FUTURE TENSE
· A workshop for parents and family members of youths or adults with developmental disabilities
date: Saturday, March 12, 2011
Registered Disability Savings Plans
Learn about a financial tool that allows a person with a disability to save money for their future without interfering with their PWD. Understand the implications of the RDSP specific to your family's needs and receive a step by step guide.
Understand the key elements of a social support network for your relative getting started on a circle of friends.
For more information on the workshop contact:
Si Stainton, Family Service Liaison, Delta Community Living Society
604.952.6490 or firstname.lastname@example.org
· Attention Teachers, Educators, Professionals, and Parents, We are very excited to announce the 3rd upcoming conference Autism Biennial Congress 2011, Vancouver BC, April 8-9, 2011 < <Click here for Registration Form> <Click here for a downloadable registration form to print out> Over 18 World's foremost autism experts, including Eustacia Cutler (Temple Grandin's mom), Dr. Doreen Granpeesheh, Dr. Stephen Shore, Jerry Newport, Keri Bowers, Bill Davis, Julie Matthewss, Dr. Tasreen Alibhai, David Kirby, Karen Simmons, Dr. Anita Bratt, Mark Bulgutch, Elaine Hall "Coach E", Shannon Kenitz, Dr. Lauren Underwood, Dr. Sheila Wagner, plus many more! April 8 - 9, 2011, Vancouver, BC Vancouver Convention Centre East, 999 Canada Place, Vancouver, BC www.AutismVancouver.com
· DRN Conference 2011 Join us for the Disability Resource Network of BC Forum 2011 " Mission Possible: Syncing New Technology with Current Practices" Monday and Tuesday, May 30 and 31, 2011 Vancouver Museum 1100 Chestnut Street, Vancouver, BC Click here for more information
· NeuroDevNet Second Annual Brain Development Conference June 19 - 21, 2011. Vancouver, BC Hyatt Regency Vancouver 655 Burrard Street
NeuroDevNet will be holding our 2011 Annual Brain Development Conference June 19-21 in Vancouver, BC.
Make sure to book these dates in your calendar now. Detailed program and registration information will be made available closer to the event.
Visit the Brain Development Conference page for updates.
· NEW FRIEND 2 FRIEND Fall workshop OCT 21 & 22, 2011 - click here! Fostering Peer Play and Friendships for Children and Teens on the Autism Spectrum: The Integrated Play GroupsTM and Friend 2 Friend Models SFU Harbour Centre, Vancouver, BC
· Save the date! Speaking of Kids 2011, Friday Oct 21
· Speaking of Kids annual conference will take place in Vancouver on Friday October 21, 2011. This one-day event will feature a celebrity guest speaker plus other engaging and knowledgeable speakers. Tickets will go on sale starting in March, 2011; and ticket prices have been kept at the minimal fee of $55! Out of town conference attendees will also be offered lowered hotel rates. LDAV conference committee members are fast at work obtaining 'goodie-bag' items and a raffle draw prize. This year's event will be the best one yet! Stay tuned as we'll be announcing our celebrity speaker in February. (info and pictures from past conferences...)
· To see all the workshops offered by Autism Community Training Please click here.