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Subject: August 11 2010 Reach Parent Weekly Newsletter
: 2010-08-11 12:52:05
: 31
Content:
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11 August 10 REACH Parent Network Weekly Newsletter.

 

To submit for our newsletter please contact Pam Collins at parentnetwork@reachdevelopment.org or 604-946-6622 ext 359

You can sign up at the  Reach Child and Youth Development Society website to receive this newsletter directly.

 

1. Help a parent! Need to know something? Want to contact other parents? This is YOUR space...

 

·      MOMS is looking for stories!  Are you having difficulty obtaining services or any issues with the following:

Special education: trouble accessing public education with required supports, inclusive placement, appropriately-trained staff, IEPs, consistency in programming, etc
Supported Child Care: trouble accessing supports among younger children as well as teens
Group homes/residential: individuals threatened with forced relocation from a group home to a less costly alternative; eligible individuals denied/waitlisted for a group home placement; individuals placed inappropriately in home share arrangements (note: we're not suggesting that there is anything intrinsically wrong with home share - it works very well for some but it's not the right choice for everyone and the concern is about CLBC forcing individuals into home share arrangements that are unsafe/inappropriate just to save a dollar).
Other issues? Family support, respite, access to early intervention/ therapy (autism or other special needs), adult transition, waitlists, adults with IQ>70, etc We need as much community feedback as possible re what's working or not working to shape our fall advocacy campaigns, and we will also need individuals willing to share their personal stories with media & govt to illustrate the issues at a human level.reply to us at: momsonthemove@telus.net(If you share information, please specify privacy requirements: Are you willing to talk to media, govt or opposition reps? Can we just share your story anonymously or your contact info as well?)

·      Hi, I'm looking for stories from parents who are have had challenges obtaining Supported Child Development funding for their children when they turn 13; parents who may have to quit their job in order to look after their child or who can't look for work because they can't get SCD.  I need to know what region of the province you live in.  All personal information will be kept strictly confidential.  SCD's primary mandate is 0 -6; then if there if there is funding 7 - 12; however, very few regions actually can or will provide support for 13 - 18.  I have heard of parents having to quit their jobs, or or can't look for work because of they can't get support for their child.  I'm also starting to hear of children being asked to leave day cares because there isn't enough support for the child and there is a waitlist for support.  Please contact Cyndi at momsonthemove@telus.net



2.  NEWS

·      Joyce Avenue group home will not close   - Community Living BC (CLBC) president Rick Mowles gave his word last week in a conversation with Nicholas Simons, MLA for Powell River-Sunshine Coast, that the four men in the Joyce Street group home will not be moved against their and their families' wishes.

·      Catch the Perseid's Meteor Shower Thursday night! Thursday night will be a prime night for watching the Perseid meteor showers thanks to a moonless night sky and the peak of the passing Perseid meteoroids.

 

 3.  Reach Child and Youth Development Society

Reach News

Reach on Facebook

Reach on Twitter

 

4.  Autism

·      Autistic Girl Expresses Profound Intelligence  - Check out Carly!

·      Hearing on Research Into Environmental Causes of Autism

·      US Senate Hearing on Autism: It's The Environment Not The Gene Pool

·      Lack Of Evidence To Support Use Of Antidepressants For Autism

·      Castration Drug Used as Autism Therapy

·      Ole Ivar Lovaas, founder of ABA therapy for autism, dies at 83 

·      New Brain Scan Diagnoses Autism In Adults UK scientists have developed a new type of brain scan that only takes 15 minutes and can diagnose autism in adults with over 90 per cent accuracy: they hope to develop it so it can be used to screen children for autism spectrum disorders.

 

5. ADHD

·      List Of Foods Not Linked To Hyperactivity Updated, UK

·      Link Between Western Diet And ADHD

·      Top Of The List For Dropping Out Of High School - ADHD, Conduct Disorder And Smoking

·      Anxiety about Back to School

 

6. Downs Syndrome

·       Casper Lja Continues to inspire and educate people on his Journey across Canada - finishing in BC summer 2010

·       Down Syndrome Buddy Walk  Saturday, September 25th. Enjoy local entertainment and a delicious lunch.  For more details and to pre-register contact:  or www.fvdss.org Early Bird cut-off deadline is September 18th.

7.  FASD

·      3rd Annual FASD "Creating Change" Fall Conference: FASD Collaboration Roundtables Oct 22nd and 23rd, 2010 at Douglas College New Westminster Campus. For more information and registration, click here.

 

8.  Ministry Information

 

BC Disability Benefits Help Sheets These were updated recently, and they include information about:
- Income Assistance for Persons with Disabilities
- Persons with Disability (PWD) funding
-Disability Tax Benefit
-Registered Disability Savings Plans and more...

 

Excellent resource on Registered Disability Savings Plan (RDSP)

 

Ministry of Children and Family Development: Responsible for providing a range of services and supports for children and youth with special needs and their families

Community Living British Columbia: Responsible for delivering services and supports for adults with developmental disabilities

 

·      Personalized Supports Initiative (PSI) Facts about Assessment

·       Assessor Report Forms

·      NEW Eligibility Policy effective JULY 1, 2010

Ministry of Housing & Social Development: Responsible for education and support payments, work programs, bus passes and health and dental benefits for persons with disabilities.

 

9. Education

 

10. Medical

·      Complex child magazine Click here for the August Edition

 

  11. Policy

 

12. Workshops & Training

·      DAVID PITONYAK in Vancouver September 30,2010

Beyond "Behaviours" - Supporting Competence, Confidence and Well-being Spectrum's 101 Friends Personal Support Networks project is excited to once again host David Pitonyak in Vancouver. Difficult behaviours result from unmet needs.  This workshop examines seven quality of life indicators that are often missing in the life of a person who experiences our services.  Based on the idea from Jean Clarke that a person's needs are best met by people whose needs are met, this day-long workshop examines strategies for supporting not only an individual who experiences disabilities but also the needs of his or her caregivers.9 - 4:30, Sept 30th, 2010 Vancouver Unitarian Church at 949 West 49th Avenue$100.00 including lunch.  To register, judy@spectrumsociety.org or 604-323-1433 or online at http://www.spectrumsociety.org/psn/pages/kendrickjune2010.aspx

·      Transforming Parent-Child Interaction with Positive Behaviour Support Presented by: Joseph Lucyshyn, Ph.D Friday & Saturday, December 3 & 4, 2010 - Vancouver

·      Oct 2nd, Vancouver: a co-hosted even by Vela, 101 Friends and Spectrum. Celebrating Stories of Community Living - 4 events in one! Crafting, Sharing and Learning!  "I hope, wherever you come from, there is someone who holds your story.  Someone who remembers you when you were knee-high to a grasshopper. Being known is critical to our well-being. Having our stories held and told by others gives us a sense of place in the world, a sense of belonging, what Pema Chodron has called, ‘the good ground.'"  from "Who Holds Your Story" by David Pitonyak. We're thinking we don't get together enough to just talk and share!   Please join us for a day co-hosted by the Vela Microboard Assocation, the 101 Friends Personal Support Networks project and Spectrum

·      THE RIPPLE EFFECT October 21, 2010 Come to beautiful Whistler for this exciting and informative retreat sponsored by BCACL especially designed for family members supporting a child with special needs or adult with a developmental disability. If you are committed to making communities more inclusive and welcoming and want to learn more about the community living movement, download the flyer for more information.

·      Best Practices: High School Transitions and Inclusive Work for Students with Disabilities.  September 20 and 21, 2010 Dr. Paul Wehman of Virginia Commonwealth University will be presenting the most current research and practice on inclusive real work for real pay for students with disabilities during the high school years. Dr. Wehman is a pioneer of inclusive employment practices for students with disabilities and was voted one of the top 10 special educators of the millennium.  Read the brochure here.

·      3rd Annual FASD "Creating Change" Fall Conference: FASD Collaboration Roundtables Oct 22nd and 23rd, 2010 at Douglas College New Westminster Campus. For more information and registration, click here.

·      Mental Illnesses and Developmental Disabilities."  hosted by "Developmental Disabilities Mental Health Services," part of the Fraser Health and Vancouver Coastal Health. This course is suitable for families, teachers, social workers, nurses, group home staff, counselors, and other professionals working with those with developmental disabilities, mental health issues and/or behavioural issues.  The course meets weekly on Fridays starting in early September, going through until mid-December.  It does have a considerable amount of take home homework.  At the end of the program participants will have been introduced to all of the major mental illnesses, will have completed a behavioural assessment and intervention package as their homework, and will have heard about many other related topics such as counseling, sexual health, family systems, etc.  Our instructors include several behaviour therapists, many nurses, a psychologist, an art therapist, a music therapist, a sexual health therapist and more. If interested contact anne.halas@fraserhealth.ca.

·      School District 70 (Alberni) Student Support Services is proud to present...
Dr. Gordon Neufeld, Level 2 Intensive Challenging Childhood Problems
August 23 to 27, 2009

Time: Monday to Friday 8:30 am 1:30 pm
Location:
Parksville Conference Centre 132 E. Jensen Avenue, Parksville, B.C. Registration Fee: $450.00 (morning refreshments provided)
Due to increasing demand for more intensive training, Dr. Neufeld has added a second level of training that builds on the conceptual foundations provided in the first week intensive.  The focus of this intensive is the challenging problems of childhood and youth: aggression, resistance, oppositionality, anxiety, dominance problems, bullying, compulsiveness, attachment problems, separation problems and much more.  The objective is to make sense of these problems and from this foundation of insight, to outline strategies for treatment and intervention. The basic prerequisite for this intensive is the Level One Week Intensive or its equivalent (i.e., five or six day courses) in the conceptual foundations of Dr. Neufeld's attachment-based developmental paradigm. For more information contact: Tamara Strijack
tamarastrijack@gordonneufeld.com Lis Kroeker lkroeker@shaw.ca
Barb Witte at 250 720-2770 or email at bwitte@sd70.bc.ca

·       Speaking of Kids Conference - October 22, 2010 - HENRY WINKLER back by popular Demand!  Learning Disabilities Association of Vancouver

·      2010 Naturally Autistic ANCA Presentation October 30, 2010 UBC Square Theatre - Calling for Award Nominations and Art Submissions

·       FAMILY FOCUS CONFERENCE  "Families, a Journey of Generations Moving Mountains" October 22-24. This will be a great conference for families. Advance Program available here If you are thinking of going it is advisable to book accommodation early, as the Chateau Whistler will be a draw. Register Here

·      See All ACT Upcoming Events

·       POPARD's Introduction to Autism Spectrum Disorders: A Course for Education Professionals, Paraprofessionals & Parents. Session 1: July 26 - 30, 2010; Session 2:  August 23 - 27, 2010. Monday to Friday 9:00 am - 3:30 pm SFU Harbour Centre Campus515 West Hastings Street, Vancouver Registration is limited to 30 - Register early to avoid disappointment!

 

13. Seasonal

·      SPECIALTY SPLASH PARTY AT LADNER LEISURE CENTRE!

For those with a disability aged 13 to 25.Ladner Leisure Centre is having a Splash Party on August 29 from 6pm to 8:30pm. There'll be a chance to learn waterpolo, water volleyball, under water hockey, and rock wall climbing among other things.For more information, call Renata at 604-952-3010 or Linsay/Scott at 604-946-3288.

·      Family Travel with Exceptional Children Summer travel with a special needs child can definitely add adventure to your plans. Still, take time for careful planning and discuss things with the whole family first, so that an adventure doesn't translate into a nightmare. We all dream of relaxing on warm sandy beaches, curling up fireside in the mountains, or touring beautiful, historic locales. Just getting to those destinations in one piece can be draining without a careful plan. Here's how to avoid tiring trips, activities, and wearing out loved ones and caregivers.

 

13. Other

·      BC211  We've changed! The Information Services Vancouver Society has officially become the 211 British columbia Services Society. Our agency name is now BC211.

·      WHEELCHAIRS FOR KIDS 8 AND UNDER  APPLY NOW!!!   SPORT

Racing around in a sporty wheelchair is a fun and healthy activity for a child with a disability. It gives them an opportunity to challenge themselves, develop fundamental movement skills and participate in play and sport with their peers. If your child has a mobility impairment (they don't have to use a wheelchair all the time), can push a manual chair on their own, reside in British Columbia and were born prior to Jan. 1, 2002 - please take advantage of this great offer. Applications must be in by Oct. 1, 2010!

·      Parenting Special Needs Current Issue

·      Summer Blog Series Post #7: The Role of Graphomotor Function in Handwriting

·      PALS Adult Program - For a Working Life  A CLBC qualified service provider, PALS has an opening for one adult (Age 19-25) with autism or other neurodevelopmental disabilities.  A person-centered skills development program that focuses on individual goals and abilities, will be offered. Areas of development may include employment readiness training, employment support, daily living skills, volunteer opportunities, and/or social/recreational community-based activities.  The fee for this flexible 3 hour per day program will be based on available individual funding.  We accept referrals from Community Living B.C. or private contracts.

·      The Science of Early Child Development

The science of early child development encompasses the fields of neurobiology, genetics and the social sciences, including psychology, social work and medicine. Research conducted over the past few decades gives us a much better understanding of human brain development and the impact of experience from conception onwards. The first phase of life is one in which there are both great opportunities and great risks that can set trajectories across a lifetime. Early experiences affect how genes are expressed and how brain connections are built. Thus early life has a long reach forward.

·      Working with Young Children   who are Learning  English as a New Language

·      Welcome to the 101 Friends Personal Support Networks e-newsletter!  August Edition

·     
I am looking for participants to join one of two new programs.
The first program is RU (Recreation Unlimited). RU is a unique inclusive program which offers young adults with developmental and or physical disabilities (19-25 years old) the opportunity to participate in an integrated, yet supported, social/recreational environment. As well as providing a 3:1 staff ratio, RU provides 1:1 peer volunteers. Recreation Unlimited will run for two weeks at the end of August. August 23rd-Sept 3rd, Mon-Friday. The cost is $100/participant/week. RU will run out of Britannia Community Center. The second program is SEE YA (Special Events and Extras for Young Adults). SEE YA is a social/recreational program designed for high functioning young adults (19-25years old) on the spectrum. SEE YA will run every Saturday afternoon (1:30-4:30pm) at Riley Park Community Center from Sept 25th - Dec 4th. The cost for SEE YA is $154/10 sessions.
Please forward this information to the young adults in your life whom you feel may be a fit for either one of these programs
Melanie Josephs Recreation Programmer - Access Services Queen Elizabeth District Vancouver Park Board 604-257-8500

melanie.josephs@vancouver.ca

·      Karen Kester, MA BCBA Behavioural Consultant, Linking Autism and Families has added a new service .   I am offering a social skills program for children aged 3-5.  The program is geared for children who have some language, emerging play skills and are able to independently follow simple directions.  The program is 8 weeks in total: It involves seeing each client 2x/week (once one-to-one and once in a group format).   I currently have a group of 3 children that have expressed great enjoyment.  Some of these children will return for the next session, which begins on August 25th.  I would also like to add a second group to help accommodate conflicting schedules, so all the children can return.  If you have any questions, please feel free to email karen@laaf.ca or call (604-862-5949).

 

 

Reach posts a variety of material in this newsletter for the information of our readers only. Reach neither endorses nor condemns this material. We urge readers to consider this information with a critical eye and to form their own opinions about its validity or applicability to their situation.

 

Pam Collins for Reach Child and Youth Development Society, Formerly known as the Delta Association for Child Development

 

Tel: 604-946-6622, ext 359,

 

If you have received this communication in error, please contact Reach by phone at 604-946-6622, and press 0.        

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