15 September 2010 REACH Parent Network Weekly Newsletter.
To submit for our newsletter or have a question for Pam to research please contact her at email@example.com or 604-946-6622 ext 359
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1. Help a parent! Need to know something? Want to contact other parents? This is YOUR space...
· Recently at the Family Support Institute we have been hearing stories of challenge and hardship for families throughout BC. We have offered our hand to as many of them as possible as they tackle their situations. Family Support is one of the things we do best at FSI and we are reaching out to as many people as we can to offer whatever support and guidance we can. At FSI we also want to take the time to celebrate stories of joy and happiness. We truly believe that uplifting, joyful stories can benefit people in a variety of ways. By telling our stories and sharing them with others we give them the ability to celebrate hope and cherish and hold onto their dreams. We want to celebrate the ability of families to be resilient and the extent of human capacity in trying times as well as in our day-to-day lives. FSI has agreed to work in partnership with CLBC to write a book of stories from families about the ways in which their loved ones have utilized informal safeguards. We have collected some stories so far and the inspiration and passion we have met with is outstanding. We want to hear more! The positive energy and all of the stories has sparked a drive in us and we are hungry to hear from more of you. We want to hear about your lives and the lives of your loved ones; we want to hear about the relationships that have developed that have helped them remain safe in community and in their lives. Please consider contacting us to share your story. Even if you don't personally have a story...perhaps you know someone who does? If you think you have a story or know of one please email Maria Glaze at firstname.lastname@example.org to get started on finding ways to tell those wonderful stories to others.
· I'm looking for 4 individuals that would like to support my two boys with skiing through School Vancouver Adaptive Ski School .If you know anyone that can ski and willing to support both by boys for 6 weeks in Jan/Feb, please pass along their info to me. Cyndi email@example.com
· Boy loses bid to go mainstream A Vancouver mother is furious that her son, a special-needs student at Eric Hamber Secondary, has been shut out of integrated classes this year, effectively isolating him from mainstream students. Read more at the above link.
· Background Op Eds re Inclusion from the summer Please let Dawn and Cyndi know what is happening in your districts - they plan to meet with community partners in October to discuss educations cuts and inclusion. firstname.lastname@example.org
· Investing in childhood development saves millions, report says Pay now, or pay much more later. That's the word from the Vancouver Board of Trade and the Justice Institute of B.C., which released a joint report Monday saying that investing in early childhood development - particularly before age five - will save governments and society millions of dollars in the long run. Read more at the link above!
3. Reach Child and Youth Development Society
· Reach inclusive preschools offer enhanced learning, themed activities, field trips and other opportunities for social, emotional, cognitive and creative development, emphasizing the individual child's awareness of his or her self, peers, family and society. Teachers are ECE and Special Needs certified. We have preschools in both North Delta and Ladner. To register your child for preschool or for more information call 604-946-6622 ext. 308 or 309
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· The Vancouver International Film Festival is excited and proud to have the opportunity to show "A Mother's Courage - Talking Back to Autism" at this year's festival. It was shown earlier this year on HBO, and we are lucky enough to be able to show the film three times during our 16 day festival. The film will be shown: Thursday, October 7 @ 3:30pm - Granville Theatre #5 Sunday, October 10 @ 3:45pm - Vancity Theatre Thursday October 14 @ 6:00pm - Granville Theatre #5 Click here to see the trailer. For Information about the Vancouver International Film Festival click here.
· FUTURE HORIZONS CONGRATULATES TEMPLE GRANDIN - 7 EMMY'S FOR THE MOVIE: GET YOUR COPY HERE!
· Asperger Social and Support Group
A.S.S. - Asperger Social & Support Group Founder - Tara Kimberley Torme email: AspergerGal@hotmail.com email: AspergerGalAspieSocial@yahoo.ca Website: www.tarakimberleytorme.com
· It has come to the attention of the ABA Support Network that many people (interventionists and consultants) have not been paid in a timely manner by the Autism Processing Unit. One interventionist told me she has contacted the APU twice, over July and August, and still has not been paid. She has been threatened with eviction. We will be meeting with our MLA/ Ministers shortly and would be grateful if anyone who has been adversely affected by this change from individualized to invoice funding. While you do not have to include too many personal details in your accounts, it would be helpful to know how long you have been waiting and if (how many times) you have contacted the APU.
We would like to include these personal accounts at the meeting.
Please contact the ABA Support Network and send your comments to:
· FOR IMMEDIATE RELEASE: August 26, 2010
Naturally Autistic® ANCA® announces its Inaugural International Naturally Autistic® ANCA® Awards UBC Robson Square Theatre, Vancouver B.C., October 30, 2010 ˆ Our Naturally Autistic® ANCA® AWARDS have been created to honour the accomplishments of autistic individuals, their supporters and organizations that support autistic people. Our inaugural event will showcase entries from three countries ˆ Canada, U.S.A and Australia. The selected Award Recipients and the selected Art Submissions will be showcased at UBC Robson Square Theatre on October 30, 2010. They will also be showcased in the Winter Issue of Naturally Autistic® Magazine. To view more of the Press Release and samples of the art submissions please click on this link http://www.naturallyautistic.com/events/ubc-robson-square-theatre-event/ <http://www.naturallyautistic.com/events/ubc-robson-square-theatre-event/>
· Walk Now for Autism Speaks This is a family-friendly FUNdraising event so bring the whole family along. There are activities for children of all ages, resources for families, light refreshments and entertainment. WHEN: Sunday, September 26, 2010, Registration starts 8:30 AM, Walk 10:00 AM WHERE: Nat Bailey Stadium, Vancouver COST: There is no registration fee but participants should bring donations, see the link for more information about fundraising and team-building.
· IT'S ADHD AWARENESS WEEK - September 13-17, 2010
Be an ADHD myth buster and help promote ADHD awareness and education by printing out the flyer in the link below and posting it on bulletin boards in your community, local recreation centers, library, bookstores, businesses, teachers' lounges and on nearby college campuses. Brought to you from CHADD, ADDA, the ADHD Coaches Organization (ACO), and ADDitude! Download Flyer: 7 Myths About ADHD Debunked
6. Downs Syndrome
· VANCOUVER INTERNATION FILM FESTIVAL PRESENTS: ME, TOO Boy meets girl. Boy falls in love. Boy has Down syndrome. Álvaro Pastor's sublimely intelligent drama poses profound questions about perception and prejudice with subtlety and humour. But it is the love story at the centre of the film that defies expectations. Winner, Audience Award, Rotterdam 2010
Sat, Oct 9th 6:40pm Empire Granville 7 Th 4
Thu, Oct 14th Noon Empire Granville 7 Th 4
· Casper Lja Continues to inspire and educate people on his Journey across Canada - finished in BC recently! Check out the blog!
· Down Syndrome Buddy Walk Saturday, September 25th. Enjoy local entertainment and a delicious lunch. For more details and to pre-register contact: or www.fvdss.org Early Bird cut-off deadline is September 18th.
8. Ministry Information
Ministry of Children and Family Development: Responsible for providing a range of services and supports for children and youth with special needs and their families.
· Transformation update
· MCFD-Framework for Action: The ‘Transition Planning & Resource Guide for Youth with Special Needs and Their Families': ‘Support Guide for Transition Planning for Youth with Special Needs': Parents' Handbook: Your Guide to Autism Funded Programs': the Fact Sheet, describing the MCFD Funded Services and Supports (updated August 2010):
Community Living British Columbia: Responsible for delivering services and supports for adults with developmental disabilities
· New Information Sheet about importance of Planning!
· New Information sheet regarding Eligibility
· Eligibility Fact Sheets in different languages!
· The Citizen - August Edition 2010
Ministry of Housing & Social Development: Responsible for education and support payments, work programs, bus passes and health and dental benefits for persons with disabilities.
· Teaching students who are low-functioning: who are they and what should we teach? During recent years, interest in individuals with autism who are high- functioning has grown as increasing numbers of students who fit that description have been identified. During the same period, those who advocate on behalf of students with severe cognitive disabilities have continued their search for information on teaching, working, and living with individuals perceived as belonging to this more challenging group. Before discussing programming issues, it seems important to first attempt to clarify who these individuals are who are referred to as low-functioning. Read more at the above link!
· The 'Double-Whammy' Facing Langley's Schools Tight provincial spending plus a deficit of at least $13.5 million equal anger, accusations and a tense wait for the auditor's verdict. Read more at the link above.
· Book Review: What Makes a Master Teacher? Geniuses like Yo Yo Ma and their mentors are profiled in 'Talent Abounds.' For the rest of us sloggers, are there lessons?
· Early Childhood Education Important For Sustainable Development Early childhood education can play a key role in relation to change when the world fails to adopt a sustainable approach economically, ecologically and socially.
· Teachers' frustration grows as ministry data system fails time and again Teachers across BC are tearing out their hair in frustration over the repeated failures and sluggish performance of the Ministry of Education's expensive centralized data system for collecting student information. Read more at the above link.
· Back to School: Tips for Parents of Children with Special Needs A new school year means a new grade, new teachers, new goals, and maybe even a new school! In order to help you and your child with special needs be as successful as you can be, we've put together a list of eight helpful back-to-school tips that we hope will make the transition into a new school year a little easier for you and your child. Read more at the above link...
· Students Helping Students Succeed at South Delta Secondary It was Wednesday morning, September 1st. Over two hundred new Grade 8 students, the future Grad Class of 2015, were milling outside the gym doors of South Delta Secondary School, waiting to experience what the greatly anticipated Grade 8 Welcoming Assembly would hold. This inaugural assembly was organized and led by the school's new Link Crew Leadership students, a group of forty-five Grade 11 and 12 students whose goal for the year will be to assist, encourage and mentor the new grade 8s as they move through their first year of high school. Read more at the above link.
· New vision for BC education to be (partly) unveiled in October According to an email circulating among school trustees this week, Education Ministry staff will meet B.C. board of education chairs and provincial councilors in Vancouver on Friday, October 22 to discuss the government's vision for the future. That vision includes the expansion of personalized learning, which "may bring significant changes to the provision and management of education in B.C.," says the email from Stephen Hansen, the executive director for the B.C. School Trustees' Association (BCSTA).
· How to talk to your kids about kids with autism in their classrooms Given the ever-increasing rates of autism (now thought to be 1 in 70 boys!) chances are your child will have a student on the spectrum in his or her class. It's natural to feel uneasy around people who seem different. As a parent, it's my job to teach not only my kids, but the people around us, so that my girls become part of the fabric of daily life in our town. After all, there is no fountain of youth (Botox notwithstanding) and someday your children will be the taxpayers, voters and community leaders responsible for my children.
· Avoid Homework Wars Does your child have a problem finishing homework within a reasonable amount of time? Do you have to survive a battle each night? If your child has learning or attention problems, it's likely you have faced such challenges. Adopting these strategies for managing homework effectively can help.
· Introducing the NEW Family Centered News Blog The Family Centered Care Courier will be the news source for all things Family Centered and will be a great resource for both hospital staff and families whose children use our services. This blog will help BC Children's meet the key action plans that support the PHSA plans, specifically, Core action #5, Partner with Families. Communication to BC families about the work of Partners in Care and family centered initiatives will allow them to understand more clearly how to get involved with providing the family voice and will help them to understand how they can be equal partners in their child's care.
· Research Study To Establish Criteria For Early Diagnosis Of Alzheimer's Disease In Down Syndrome, Leading To Earlier Treatment "Since this program began in 1987, it has developed into one of the largest research efforts of its kind in the world," said IBR Director W. Ted Brown, MD, PhD. "The findings may have direct implications for promoting more successful treatment and outcomes for adults with Down syndrome as they age."
· Complex child magazine Click Here for the September BACK TO SCHOOL ISSUE!
12. Workshops & Training (in order of date)
· Gordon Neufeld Institute videocourse filming events
o Making Sense of Attention Problems: Tuesday, September 21
o Making Sense of Discipline: Thursday, September 23
o Making Sense of Play: Friday, September 24
· Best Practices: High School Transitions and Inclusive Work for Students with Disabilities. September 20 and 21, 2010 Dr. Paul Wehman of Virginia Commonwealth University will be presenting the most current research and practice on inclusive real work for real pay for students with disabilities during the high school years. Dr. Wehman is a pioneer of inclusive employment practices for students with disabilities and was voted one of the top 10 special educators of the millennium. Read the brochure here.
· DAVID PITONYAK in Vancouver September 30,2010
Beyond "Behaviours" - Supporting Competence, Confidence and Well-being Spectrum's 101 Friends Personal Support Networks project is excited to once again host David Pitonyak in Vancouver. Difficult behaviours result from unmet needs. This workshop examines seven quality of life indicators that are often missing in the life of a person who experiences our services. Based on the idea from Jean Clarke that a person's needs are best met by people whose needs are met, this day-long workshop examines strategies for supporting not only an individual who experiences disabilities but also the needs of his or her caregivers.9 - 4:30, Sept 30th, 2010 Vancouver Unitarian Church at 949 West 49th Avenue$100.00 including lunch. To register, email@example.com or 604-323-1433 or online at http://www.spectrumsociety.org/psn/pages/kendrickjune2010.aspx
· Health and Wellbeing in Children, Youth, and Adults with Developmental Disabilities: Autism, Intellectual Disabilities and Other Neurodevelopmental Disorders Pre-Conference Workshops: September 29, 2010 Main Conference: September 30, October 1, 2010 The Coast Plaza Hotel & Suites Vancouver, BC, Canada
· Autism Canada Foundation's CHANGING THE COURSE OF AUTISM Friday, October 1 and Saturday, October 2, 2010
MOUNT ROYAL UNIVERSITYRoderick Mah Centre of Continuous LearningCalgary, Alberta
· Oct 2nd, Vancouver: a co-hosted even by Vela, 101 Friends and Spectrum. Celebrating Stories of Community Living - 4 events in one! Crafting, Sharing and Learning! "I hope, wherever you come from, there is someone who holds your story. Someone who remembers you when you were knee-high to a grasshopper. Being known is critical to our well-being. Having our stories held and told by others gives us a sense of place in the world, a sense of belonging, what Pema Chodron has called, ‘the good ground.'" from "Who Holds Your Story" by David Pitonyak. We're thinking we don't get together enough to just talk and share! Please join us for a day co-hosted by the Vela Microboard Association, the 101 Friends Personal Support Networks project and Spectrum
· THE 11th ANNUAL SELF ADVOCACY LEADERSHIP INSTITUTE: To learn more about self advocacy; safety; rights; healthy relationships; become leaders in your own Community WHEN: October 8 - October 10, 5:00 p.m. Friday to 1:30 p.m. Sunday WHERE: Edenvale Retreat and Conference Centre 4330 Bradner Road, Abbotsford, BC COST: $175.00 per person includes: 2 nights and 3 days accommodations, all healthy meals, registration, all workshops, recreation, and FUN. Find the flyer and a copy of the registration form at BACI Family Support and Advocacy If you have any questions, please call and register with the Coordinator Gregg Schiller at 604-688-7001 or by fax at 604-688-7069 or by e-mail at: <mailto:GreggSchiller@shaw.ca>
· Hey, My Brain Doesn't Work That Way: Understanding Sensory Processing, Promoting Self-Regulation and Supporting Stress Management Presenter: Marc Landry, Occupational Therapist
Saturday, October 16, 2010 9:00am - 3:00pm South Arm Community Hall
9020 Williams Road Richmond, BC$35.00* (Lunch Included) For information please contact Aman Pannu at 604-279-7049. Sponsored by Richmond Supported Child Development Program and the South Arm Community Association.
· NEW Delta Community Living Society, the Delta Family Alliance Network& the Family Support Institute Invite you to attend: Transitions - Leaving High School, What's Next? It's never too early to plan for this transition! Leaving High School is an age-old rite of passage for young people. For a youth with special needs and his or her family, this can be a very exciting time, but also one of uncertainty. Beginning the process of Transition Planning as early as possible allows adequate time to prepare for adulthood. This workshop is designed to assist you in planning for your child's future by introducing some planning tools, providing a step by step checklist and sharing some in-depth information on important points. Information packages will be given to all participants. Appropriate For: Parents and family members of students with developmental disabilities aged 15 to 19
Presenter: Helen Stovell Date: Saturday, October 16th, 2010, 10:30am - 2:30pm Venue: Large Boardroom, Delta Community Living Society, #1-3800-72nd Street, Delta, BC V4K 3N2
Cost: $10.00 per person
To find out more information about this workshop, please contact:
Si Stainton, Delta Community Living Society, Family Services Liaison,
firstname.lastname@example.org . 604.952.6490
· THE RIPPLE EFFECT October 21, 2010 Come to beautiful Whistler for this exciting and informative retreat sponsored by BCACL especially designed for family members supporting a child with special needs or adult with a developmental disability. If you are committed to making communities more inclusive and welcoming and want to learn more about the community living movement, download the flyer for more information.
· Speaking of Kids Conference - October 22, 2010 - HENRY WINKLER back by popular Demand! Learning Disabilities Association of Vancouver
· 3rd Annual FASD "Creating Change" Fall Conference: FASD Collaboration Roundtables Oct 22nd and 23rd, 2010 at Douglas College New Westminster Campus. For more information and registration, click here.
· FAMILY FOCUS CONFERENCE "Families, a Journey of Generations Moving Mountains" October 22-24. This will be a great conference for families. Advance Program available here If you are thinking of going it is advisable to book accommodation early, as the Chateau Whistler will be a draw. Register Here
· 2010 Naturally Autistic ANCA Presentation October 30, 2010 UBC Square Theatre - Calling for Award Nominations and Art Submissions
· NEW Delta Community Living Society, & the Delta Family Alliance Network Invite you to attend: Thinking in the Future Tense Two days of practical and relevant workshops to help you plan effectively for the future of someone with a developmental disability. Workshop 1: Saturday, November 6th, 2010, 10:00am - 4:00pm Workshop 2: Saturday, November 20th, 2010, 10:00am - 4:00pm Workshop 1: Wills, Estates & Trusts and Supported Decision Making (Representation Agreement) This seminar will answer your questions about trusts, choosing executors and guardians and the importance of planning your will. Working through the steps will better prepare you to update or write your will. Supported Decision Making (Representation Agreement) will walk you through this powerful legal tool that allows people to designate others to represent them in their daily financial affairs and health care needs Presenter: Planned Lifetime Advocacy Network (PLAN) Venue: Scott Road Connections, Delta Community Living Society, #105, 7953 - 120 St., Delta Target Audience: Parents and family members of adults with developmental disabilities. Closing date for registration: Friday, 22nd October, 2010. Workshop fee: $10.00 (inc. lunch & refreshment) Workshop 2: The Registered Disability Savings Plan (RDSP) and Personal Networks Learn about a financial tool that allows a person with a disability to save money for their future without interfering with their PWD Learn how the federal government can contribute up to $90,000 to the plan Understand the implications of the RDSP specific to your family's needs Receive a Step by step guide. Personal Networks: Understand the key elements of a social support network for your relative.Getting started on a circle of friends Date: Workshop 2: Saturday, November 20th, 2010, 10:00am - 4:00pm Presenter: Planned Lifetime Advocacy Network (PLAN) Venue: Scott Road Connections, Delta Community Living Society, #105, 7953 - 120 St., Delta Target Audience: Parents and family members of adults with developmental disabilities. Closing date for registration: Friday, 5th November, 2010. Workshop fee: $10.00 (inc. lunch & refreshment). To register for these workshops, please contact Joanne Fee, Delta Community Living Society, Human Resources & Administrative Assistant email@example.com <mailto:firstname.lastname@example.org> , 604-946-9508 ext. 222. To find out more information about these workshops, please contact Si Stainton, Delta Community Living Society, Family Services Liaison, email@example.com , 604-946-9508 ext. 230.
· Transforming Parent-Child Interaction with Positive Behaviour Support Presented by: Joseph Lucyshyn, Ph.D Friday & Saturday, December 3 & 4, 2010 - Vancouver
· Each year, the BC Epilepsy Society hosts Speaking of Epilepsy, a series of lectures on a wide variety of epilepsy related topics. In recent years topics have been as diverse as treatments, active living, epilepsy and learning, stress management, siblings of children with epilepsy, surgery, women's health, employment, and human rights issues. The 2010-2011 Speaking of Epilepsy lecture series includes: October TBA What's New in Epilepsy Dr. Kevin Farrell
November 15 Epilepsy and Family Dynamics Dr. Josef Zaide and Dr. Audrey Ho
January TBA What To Do If Your Medications Fail Dr. Linda Huh
February TBA Ask the Expert Panel Discussion April TBA Women With Epilepsy May TBAAnti-Epileptic Medications June TBA Epilepsy Research in BC All lectures are held at the Chan Auditorium in the Education and Research Building at the Children's and Women's Health Centre of BC located on 4480 Oak Street at 28th Avenue. Lectures run from 7-9 pm. Please contact us at 604-875-6704 or at firstname.lastname@example.org to reserve your seat and confirm dates. Admission is free to current members of our Society and only $10 for each lecture if you are not a member. You can take out a membership at the start of any lecture and receive free admission.
· See All ACT Upcoming Events
· We are pleased to announce the launching of our online education program featuring Dr. Neufeld and the faculty of the Neufeld Institute as presenters. It is our hope that by using today's internet technology, we can provide more access to this approach. Click on the above link for more information.
· FSI's 3rd Annual Trivia Night is on Friday, November 5, 2010 (7:30pm-10:30pm) at Marlborough Elementary School in Burnaby, BC: Come and join us for a night of fun, laughter, food and prizes. If you would like to donate a door or game prize, please complete the attached donation form and return it to the FSI office together with your prize. Any item would be a welcome gift to help us in our efforts to support families in communities throughout BC. Click here for more Trivia Night Information. Click here for the Trivia Night prize donation form.
· Special Olympics BC Ready to Launch Youth Programs for 2010-2011 Special Olympics BC is excited to announce that for the third consecutive year the Active Start and FUNdamentals programs will be offered to communities throughout BC for young children with intellectual disabilities. The Active Start program is designed for children between the ages of 2-6 years with intellectual disabilities to provide the opportunity to learn, practice, and showcase basic fundamental movement skills in a safe and fun environment. The FUNdamentals program is similar to the Active Start program however it is open to children between the ages of 7-11 years with intellectual disabilities and offers basic skill development in the sports of soccer, softball, track and field, and basketball. Both programs create an opportunity for children to develop gross motor skills that will enable them to participate in sport and physical activities but also provide the environment where children can improve their self-confidence and self-esteem. The programs also offer parents/guardians the chance to establish a social network and the opportunity to learn about the importance of physical fitness, nutrition and sport. For information on how to get involved or start a program in your community please contact Shawn Fevens at email@example.com or 604-737-3055.
· Over the next few months posAbilities is hosting an exciting array of special events and educational opportunities. The Fall line-up includes: 1st Annual Wellness Fair, this Thursday, September 16th, from 11am-7pm at Heritage Hall in Vancouver
Can you dig it's Harvest Celebration, September 24th, from 11am- 2pm at Ridgeview Heights Garden Club, Burnaby Team Laurel-posAbilities at the annual Walk for Autism Now, September 26th from 8:30 to 12noon, Vancouver
posAbilities Annual General Meeting, September 27th, from 6:00 - 8:00 pm., at the Executive Inn, Lougheed Hwy, Burnaby
A workshop on CLBC's Employment Policy, October 4th from 6-8:30 pm in Burnaby The "Big Picture Award Gala" on October 13th,a part of the Vancouver International Film Festival*
6th Annual Art Show for B.C. Artists with Developmental Disabilities, October 14th from 5-9pm, Heritage Hall, Vancouver
Securing the Future: Personal & Financial Planning for Families - a six week series, beginning October 14th in Burnaby.* For more information about these events, please visit our home page, <http://www.posabilities.ca/> where you will find an event calendar, links to information about featured programs and initiatives and downloadable posters, or print off the attached documents for easy reference.
· BC Epilepsy E Newsletter - CLICK HERE!
· Parenting Special Needs Current Issue - Check out their BACK TO SCHOOL ISSUE and the Talking Watch and Safety Tatoos on page 13
· Exceptional Family Magazine - current issue!
· 101 Friends September E Newsletter!
Reach posts a variety of material in this newsletter for the information of our readers only. Reach neither endorses nor condemns this material. We urge readers to consider this information with a critical eye and to form their own opinions about its validity or applicability to their situation.
Pam Collins for Reach Child and Youth Development Society, Formerly known as the Delta Association for Child Development
Tel: 604-946-6622, ext 359,
If you have received this communication in error, please contact Reach by phone at 604-946-6622, and press 0.